Healthcare Professionals' Learning Needs and Perspectives on Essential Information in Genetic Cancer Care: A Systematic Review

SY Park, Y Kim, MC Katapodi, YJ Kim, H Chae, YJ Choi… - Cancers, 2024 - mdpi.com
Simple Summary Increasing demand for genetic testing and counseling among families with
hereditary cancers has drawn attention to the genetic skills and knowledge of healthcare …

Health professionals contacting patients' relatives directly about genetic risk (with patient consent): current clinical practice and perspectives

A Stott, EO Madelli, T Boughtwood, KJ Nowak… - European Journal of …, 2024 - nature.com
Genetic testing can provide risk information to individuals and their blood relatives. Cascade
testing uptake by at-risk relatives is< 50%, with suboptimal family communication a key …

[HTML][HTML] Acceptability and Usability of the Family Gene Toolkit for Swiss and Korean Families Harboring BRCA1/BRAC2 Pathogenic Variants: A Web-Based Platform …

V Baroutsou, V Duong, A Signorini, R Saccilotto… - Cancers, 2023 - mdpi.com
Simple Summary The study adapted an existing Web-based intervention, the Family Gene
Toolkit, for Swiss and Korean families that harbor the genetic changes associated with …

The hidden costs: a qualitative study of financial toxicity in hereditary cancer syndromes across Canada

S Rajeziesfahani - 2024 - research.library.mun.ca
Identifying financial toxicity (FT) following a cancer diagnosis is critical for providing
interventions and support to patients. There is virtually no research on FT in patients with …

[PDF][PDF] Acceptability and Usability of the Family Gene Toolkit for Swiss and Korean Families Harboring BRCA1/BRAC2 Pathogenic Variants: A Web-Based Platform for …

V Baroutsou, V Duong, A Signorini, R Saccilotto… - 2023 - academia.edu
The study adapted the Family Gene Toolkit and developed a customized web application for
Swiss and Korean families harboring BRCA1 or BRCA2 pathogenic variants to support …

Design and Evaluation Patient Portal for Patients with HTLV-1

RN Aval, H Rafatpanah, M Sarbaz, K Kimiafar - 2024 - researchsquare.com
Background: Patient portals are increasingly accepted as part of standard medical care. This
study aimed to design and evaluate a patient portal for patients with Human T-lymphotropic …