Defining global strategies to improve outcomes in sickle cell disease: a Lancet Haematology Commission

FB Piel, DC Rees, MR DeBaun, O Nnodu… - The Lancet …, 2023 - thelancet.com
Executive summary All over the world, people with sickle cell disease (an inherited
condition) have premature deaths and preventable severe chronic complications, which …

A multidisciplinary approach to the clinical management of Prader–Willi syndrome

J Duis, PJ van Wattum, A Scheimann… - Molecular genetics & …, 2019 - Wiley Online Library
Abstract Background Prader–Willi syndrome (PWS) is a complex neuroendocrine disorder
affecting approximately 1/15,000–1/30,000 people. Unmet medical needs of individuals with …

Indications for transfusion in the management of sickle cell disease

H Han, L Hensch, VN Tubman - Hematology, 2021 - ashpublications.org
The transfusion of red blood cells (RBCs) is a crucial treatment for sickle cell disease (SCD).
While often beneficial, the frequent use of transfusions is associated with numerous …

Sickle cell disease

MJ Bonner, ES Puffer, VW Willard - Textbook of pediatric …, 2010 - books.google.com
Sickle cell disease (SCD) is a group of inherited autosomal recessive disorders, including
sickle cell anemia, sickle beta-thalassemia, and other hemoglobinopathies, which are …

Pregnancy outcomes in women with sickle cell disease in California

OO Adesina, A Brunson, SC Fisch, B Yu… - American journal of …, 2023 - Wiley Online Library
Adverse pregnancy outcomes occur frequently in women with sickle cell disease (SCD)
across the globe. In the United States, Black women experience disproportionately worse …

Complications in pregnant women with sickle cell disease

K Smith-Whitley - Hematology 2014, the American Society of …, 2019 - ashpublications.org
Pregnancy in women with sickle cell disease (SCD) is associated with increased maternal
and fetal morbidity and mortality. Outcomes vary widely owing to methodological limitations …

Identifying clinical and research priorities in sickle cell lung disease. An Official American Thoracic Society Workshop Report

AP Ruhl, SC Sadreameli, JL Allen… - Annals of the …, 2019 - atsjournals.org
Background: Pulmonary complications of sickle cell disease (SCD) are diverse and
encompass acute and chronic disease. The understanding of the natural history of …

White paper: pathways to progress in newborn screening for sickle cell disease in sub-Saharan Africa

L Hsu, OE Nnodu, BJ Brown, F Tluway… - Journal of tropical …, 2018 - pmc.ncbi.nlm.nih.gov
Sickle Cell Disease (SCD) is among the most common single-gene diseases in the world
but evidence-based comprehensive health care has not been implemented where the …

Interprofessional learning in multidisciplinary healthcare teams is associated with reduced patient mortality—a quantitative systematic review and meta-analysis

CS Webster, T Coomber, S Liu, K Allen… - Journal of Patient …, 2023 - journals.lww.com
Objective The aim of the study is to identify quantitative evidence for the efficacy of
interprofessional learning (IPL) to improve patient outcomes. Methods We conducted a …

Interventions to reduce preterm birth and stillbirth, and improve outcomes for babies born preterm in low-and middle-income countries: a systematic review

E Wastnedge, D Waters, SR Murray… - Journal of global …, 2021 - pmc.ncbi.nlm.nih.gov
Background Reducing preterm birth and stillbirth and improving outcomes for babies born
too soon is essential to reduce under-5 mortality globally. In the context of a rapidly evolving …