[HTML][HTML] The effectiveness of advance care planning in improving end-of-life outcomes for people with dementia and their carers: a systematic review and critical …

J Dixon, M Karagiannidou, M Knapp - Journal of pain and symptom …, 2018 - Elsevier
Context End-of-life care for people with dementia can be poor, involving emergency hospital
admissions, burdensome treatments of uncertain value, and undertreatment of pain and …

[HTML][HTML] Quality indicators for palliative care: update of a systematic review

ML De Roo, K Leemans, SJJ Claessen, J Cohen… - Journal of pain and …, 2013 - Elsevier
Context In 2007, a systematic review revealed a number of quality indicators referring mostly
to palliative care outcomes and processes. Psychosocial and spiritual aspects were scarcely …

[HTML][HTML] Towards a 'patient-centred'operationalisation of the new dynamic concept of health: a mixed methods study

M Huber, M van Vliet, M Giezenberg, B Winkens… - BMJ open, 2016 - bmjopen.bmj.com
Objective To evaluate among stakeholders the support for the new, dynamic concept of
health, as published in 2011:'Health as the ability to adapt and to self-manage', and to …

Decision making in advanced heart failure: a scientific statement from the American Heart Association

LA Allen, LW Stevenson, KL Grady, NE Goldstein… - Circulation, 2012 - ahajournals.org
Shared decision making for advanced heart failure has become both more challenging and
more crucial as duration of disease and treatment options have increased. High-quality …

Dignity-conserving care—a new model for palliative care: hel** the patient feel valued

HM Chochinov - Jama, 2002 - jamanetwork.com
The basic tenets of palliative care may be summarized as the goal of hel** patients to die
with dignity. The term" dignity" provides an overarching framework that may guide the …

[HTML][HTML] Improving end-of-life communication and decision making: the development of a conceptual framework and quality indicators

T Sinuff, P Dodek, JJ You, D Barwich, C Tayler… - Journal of pain and …, 2015 - Elsevier
Context The goal of end-of-life (EOL) communication and decision making is to create a
shared understanding about a person's values and treatment preferences that will lead to a …

Exploring the spiritual needs of people dying of lung cancer or heart failure: a prospective qualitative interview study of patients and their carers

SA Murray, M Kendall, K Boyd, A Worth… - Palliative …, 2004 - journals.sagepub.com
Background: We set out to explore whether patients with life-threatening illnesses and their
informal carers consider they experience significant spiritual needs, in the context of their …

[HTML][HTML] Relationship between spirituality, meaning in life, psychological distress, wish for hastened death, and their influence on quality of life in palliative care …

M Bernard, F Strasser, C Gamondi… - Journal of pain and …, 2017 - Elsevier
Context Spiritual, existential, and psychological issues represent central components of
quality of life (QOL) in palliative care. A better understanding of the dynamic nature …

The role of general practitioners in continuity of care at the end of life: a qualitative study of terminally ill patients and their next of kin

E Michiels, R Deschepper… - Palliative …, 2007 - journals.sagepub.com
Objectives: Exploring terminal patients' perceptions of GPs' role in delivering continuous end-
of-life care and identifying barriers to this. Design: Qualitative interview study with patients …

Who should measure quality of life?

J Addington-Hall, L Kalra - Bmj, 2001 - bmj.com
One of the reasons behind the rapid development of quality of life measures in health care
has been the growing recognition of the importance of understanding the impact of …