[HTML][HTML] What makes administrative data “research-ready”? A systematic review and thematic analysis of published literature

L Mc Grath-Lone, MA Jay, R Blackburn… - … Journal of Population …, 2022 - ncbi.nlm.nih.gov
Objective To define the characteristics of research-ready administrative data based on a
systematic review and synthesis of existing literature. Methods On 29 th June 2021, we …

Impact of the SARS-CoV-2 pandemic on female breast, colorectal and non-small cell lung cancer incidence, stage and healthcare pathway to diagnosis during 2020 …

G Greene, R Griffiths, J Han, A Akbari, M Jones… - British Journal of …, 2022 - nature.com
Background COVID-19 pandemic responses impacted behaviour and health services. We
estimated the impact on incidence, stage and healthcare pathway to diagnosis for female …

Effect on life expectancy of temporal sequence in a multimorbidity cluster of psychosis, diabetes, and congestive heart failure among 1· 7 million individuals in Wales …

RK Owen, J Lyons, A Akbari, B Guthrie… - The Lancet Public …, 2023 - thelancet.com
Background To inform targeted public health strategies, it is crucial to understand how
coexisting diseases develop over time and their associated impacts on patient outcomes …

Trajectories in chronic disease accrual and mortality across the lifespan in Wales, UK (2005–2019), by area deprivation profile: linked electronic health records cohort …

J Lyons, A Akbari, KR Abrams, AA Lorenzo… - The Lancet Regional …, 2023 - thelancet.com
Background Understanding and quantifying the differences in disease development in
different socioeconomic groups of people across the lifespan is important for planning …

Multidisciplinary ecosystem to study lifecourse determinants and prevention of early-onset burdensome multimorbidity (MELD-B)–protocol for a research collaboration

SDS Fraser, S Stannard, E Holland… - Journal of …, 2023 - journals.sagepub.com
Background Most people living with multiple long-term condition multimorbidity (MLTC-M)
are under 65 (defined as 'early onset'). Earlier and greater accrual of long-term conditions …

[HTML][HTML] Develo** a linked electronic health record derived data platform to support research into healthy ageing

NE Andrew, R Beare, T Ravipati, E Parker… - … Journal of Population …, 2023 - ncbi.nlm.nih.gov
Objectives To describe the establishment a linked EHR derived data platform in the National
Centre for Healthy Ageing, Melbourne, Australia, aimed at enabling research targeting …

The impact of the COVID-19 pandemic on community prescription of opioid and antineuropathic analgesics for cancer patients in Wales, UK

J Han, M Rolles, F Torabi, R Griffiths, S Bedston… - Supportive Care in …, 2023 - Springer
Purpose Public health measures instituted at the onset of the COVID-19 pandemic in the UK
in 2020 had profound effects on the cancer patient pathway. We hypothesise that this may …

Representing multimorbid disease progressions using directed hypergraphs

J Burke, A Akbari, R Bailey, K Fasusi, RA Lyons… - medRxiv, 2023 - medrxiv.org
Objective To introduce directed hypergraphs as a novel tool for assessing the temporal
relationships between coincident diseases, addressing the need for a more accurate …

Using hypergraphs to quantify importance of sets of diseases by healthcare resource utilisation: A retrospective cohort study

J Rafferty, A Lee, RA Lyons, A Akbari, N Peek… - Plos one, 2023 - journals.plos.org
Rates of Multimorbidity (also called Multiple Long Term Conditions, MLTC) are increasing in
many developed nations. People with multimorbidity experience poorer outcomes and …

Cohort profile: creation of the SAIL MELD-B e-cohort (SMC) and SAIL MELD-B children and young adult e-cohort (SMYC) to investigate the lived experience of the ' …

R Chiovoloni, JJ Dylag, NA Alwan, A Berrington… - BMJ open, 2025 - bmjopen.bmj.com
Purpose We have established the SAIL MELD-B electronic cohort (e-cohort SMC) and the
SAIL MELD-B children and Young adults e-cohort (SMYC) as a part of the Multidisciplinary …