Social attainment in survivors of pediatric central nervous system tumors: a systematic review and meta-analysis from the Children's Oncology Group

F Schulte, AS Kunin-Batson, BA Olson-Bullis… - Journal of Cancer …, 2019 - Springer
Purpose Improved therapies for pediatric central nervous system (CNS) tumors have
increased survival rates; however, many survivors experience significant long-term …

Long‐term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: a systematic review

E Nicklin, G Velikova, C Hulme… - Psycho …, 2019 - Wiley Online Library
Objective Long‐term issues following diagnosis and treatment of a childhood brain tumour
often become apparent as the survivor enters adolescence and young adulthood. Their …

[HTML][HTML] Quality of life in children with advanced cancer: a report from the PediQUEST study

AR Rosenberg, L Orellana, C Ullrich, T Kang… - Journal of pain and …, 2016 - Elsevier
Context Modifiable factors of health-related quality of life (HRQOL) are poorly described
among children with advanced cancer. Symptom distress may be an important factor for …

Long‐term health‐related quality of life in young childhood cancer survivors and their parents

JE Fardell, CE Wakefield… - Pediatric blood & …, 2021 - Wiley Online Library
Purpose Few studies have investigated the health‐related quality of life (HRQoL) of young
childhood cancer survivors and their parents. This study describes parent and child cancer …

Caregiver distress and patient health‐related quality of life: psychosocial screening during pediatric cancer treatment

L Pierce, MC Hocking, LA Schwartz… - Psycho …, 2017 - Wiley Online Library
Background Reports of acceptability of psychosocial screening are limited, and the utility of
screening in identifying risk factors for health‐related quality of life (HRQL) of children with …

Family functioning and adaptation following pediatric brain tumor: a systematic review

E Moscato, J Patronick, SL Wade - Pediatric blood & cancer, 2022 - Wiley Online Library
Introduction Pediatric brain tumor survivors (PBTS) experience psychosocial difficulties and
poor quality of life (QOL). Family functioning may be adversely impacted by the stress of …

Patterns of family management for adolescent and young adult brain tumor survivors.

JA Deatrick, LP Barakat, GJ Knafl… - Journal of Family …, 2018 - psycnet.apa.org
Little is known about how families systemically incorporate the work of caring for adolescent
and young adult (AYA) survivors of childhood brain tumors who often remain dependent on …

The impact of caregiver anxiety/depression symptoms and family functioning on child quality of life during pediatric cancer treatment: from diagnosis to 6 months

L Desjardins, A Solomon, W Shama… - Journal of …, 2022 - Taylor & Francis
Objectives: A pediatric cancer diagnosis can have a significant impact on the quality of life
(QOL) of the child. Diagnosis and treatment impact caregiver anxiety/depression symptoms …

Living as a cancer survivor: a qualitative study on the experiences of Belgian adolescents and young adults (AYAs) after childhood cancer

N Belpame, MC Kars, E Deslypere, P Rober… - Journal of Pediatric …, 2019 - Elsevier
Purpose Insight was sought in how a childhood cancer experience plays a role in daily life of
adolescents and young adults (AYA) survivors. Design and methods A qualitative research …

Quality of life in pediatric cancer survivors: contributions of parental distress and psychosocial family risk

NM Racine, M Khu, K Reynolds… - Current …, 2018 - pmc.ncbi.nlm.nih.gov
Background Pediatric survivors of childhood cancer are at increased risk of poor quality of
life and social-emotional outcomes following treatment. The relationship between parent …