Unmet supportive care needs of families of children with chronic illness: A systematic review

S Thomas, NP Ryan, LK Byrne… - Journal of Clinical …, 2023 - Wiley Online Library
Abstract Background and Aims Unmet supportive care needs (SCN) refer to perceived gaps
in the support parents want to manage caregiving activities for children with chronic health …

Self-efficacy in symptom management for adolescents and young adults with cancer: a systematic review

CP Thornton, M Li, CH Yeh, K Ruble - Supportive Care in Cancer, 2021 - Springer
Background Adolescents and young adults (AYAs) have more frequent and intense adverse
effects from cancer therapy than other age groups. Self-efficacy, the ability for persons to …

Relationship of race and ethnicity on access, timing, and disparities in pediatric palliative care for children with cancer

NP DeGroote, KE Allen, EE Falk… - Supportive Care in …, 2022 - Springer
Purpose Pediatric palliative care (PPC) improves quality of life for children and adolescents
with cancer. Little is known about disparities between different racial and ethnic groups in …

Communication with parents and young adult patients affected by complex vascular malformations

B Sisk, C Bereitschaft, A Kerr - Pediatric Blood & Cancer, 2023 - Wiley Online Library
Abstract Background Vascular malformations (VMs) are rare disorders that can cause pain,
coagulopathy, disfigurement, asymmetric growth, and disability. Families affected by …

Communication interventions in adult and pediatric oncology: a sco** review and analysis of behavioral targets

BA Sisk, GL Schulz, JW Mack, L Yaeger, J DuBois - PLoS One, 2019 - journals.plos.org
Background Improving communication requires that clinicians and patients change their
behaviors. Interventions might be more successful if they incorporate principles from …

Transition from acute treatment to survivorship: exploring the psychosocial adjustments of Chinese parents of children with cancer or hematological disorders

NCY Yeung, KC Cheung, HC Chau… - International journal of …, 2021 - mdpi.com
Objectives: Parents of children diagnosed with critical illnesses face multiple challenges
during their caregiving experience. However, relevant studies have been limited in the …

Families' experiences of child and adolescent brain tumor: a systematic review and synthesis of qualitative research

K Young, A Bowers, N Bradford - Psycho‐Oncology, 2021 - Wiley Online Library
Objectives Brain tumors are the most common and fatal of all solid tumors for children and
adolescents; those who survive live with long‐term physical and emotional consequences …

Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a …

G Alarjeh, S Boufkhed, W Alrjoub, P Guo… - Frontiers in …, 2023 - frontiersin.org
Introduction Effective communication in pediatric palliative cancer care is an important
aspect of practice to enhance patient-and family-centered care, and to optimize decision …

Thinking ahead: Parents' worries about late effects of childhood cancer treatment

KA Greenzang, CA Kelly, H Al‐Sayegh… - Pediatric blood & …, 2021 - Wiley Online Library
Background Many childhood cancersurvivors experience at least one late effect of treatment,
and both late effects and persistent cancer‐related worry can negatively impact quality of life …

Feasibility, acceptability, and education of pediatric oncology providers before and after an embedded pediatric palliative oncology clinic

EE Falk, KE Allen, NP DeGroote… - JCO Oncology …, 2021 - ascopubs.org
PURPOSE: Most pediatric palliative care (PPC) education is trainee-directed, didactic, or
simulation-based and therefore limited in scope, realism, and audience. We explored …