Unmet supportive care needs of families of children with chronic illness: A systematic review
Abstract Background and Aims Unmet supportive care needs (SCN) refer to perceived gaps
in the support parents want to manage caregiving activities for children with chronic health …
in the support parents want to manage caregiving activities for children with chronic health …
Self-efficacy in symptom management for adolescents and young adults with cancer: a systematic review
Background Adolescents and young adults (AYAs) have more frequent and intense adverse
effects from cancer therapy than other age groups. Self-efficacy, the ability for persons to …
effects from cancer therapy than other age groups. Self-efficacy, the ability for persons to …
Relationship of race and ethnicity on access, timing, and disparities in pediatric palliative care for children with cancer
NP DeGroote, KE Allen, EE Falk… - Supportive Care in …, 2022 - Springer
Purpose Pediatric palliative care (PPC) improves quality of life for children and adolescents
with cancer. Little is known about disparities between different racial and ethnic groups in …
with cancer. Little is known about disparities between different racial and ethnic groups in …
Communication with parents and young adult patients affected by complex vascular malformations
Abstract Background Vascular malformations (VMs) are rare disorders that can cause pain,
coagulopathy, disfigurement, asymmetric growth, and disability. Families affected by …
coagulopathy, disfigurement, asymmetric growth, and disability. Families affected by …
Communication interventions in adult and pediatric oncology: a sco** review and analysis of behavioral targets
BA Sisk, GL Schulz, JW Mack, L Yaeger, J DuBois - PLoS One, 2019 - journals.plos.org
Background Improving communication requires that clinicians and patients change their
behaviors. Interventions might be more successful if they incorporate principles from …
behaviors. Interventions might be more successful if they incorporate principles from …
Transition from acute treatment to survivorship: exploring the psychosocial adjustments of Chinese parents of children with cancer or hematological disorders
NCY Yeung, KC Cheung, HC Chau… - International journal of …, 2021 - mdpi.com
Objectives: Parents of children diagnosed with critical illnesses face multiple challenges
during their caregiving experience. However, relevant studies have been limited in the …
during their caregiving experience. However, relevant studies have been limited in the …
Families' experiences of child and adolescent brain tumor: a systematic review and synthesis of qualitative research
Objectives Brain tumors are the most common and fatal of all solid tumors for children and
adolescents; those who survive live with long‐term physical and emotional consequences …
adolescents; those who survive live with long‐term physical and emotional consequences …
Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a …
Introduction Effective communication in pediatric palliative cancer care is an important
aspect of practice to enhance patient-and family-centered care, and to optimize decision …
aspect of practice to enhance patient-and family-centered care, and to optimize decision …
Thinking ahead: Parents' worries about late effects of childhood cancer treatment
KA Greenzang, CA Kelly, H Al‐Sayegh… - Pediatric blood & …, 2021 - Wiley Online Library
Background Many childhood cancersurvivors experience at least one late effect of treatment,
and both late effects and persistent cancer‐related worry can negatively impact quality of life …
and both late effects and persistent cancer‐related worry can negatively impact quality of life …
Feasibility, acceptability, and education of pediatric oncology providers before and after an embedded pediatric palliative oncology clinic
EE Falk, KE Allen, NP DeGroote… - JCO Oncology …, 2021 - ascopubs.org
PURPOSE: Most pediatric palliative care (PPC) education is trainee-directed, didactic, or
simulation-based and therefore limited in scope, realism, and audience. We explored …
simulation-based and therefore limited in scope, realism, and audience. We explored …