Simple Summary Retinoblastoma is a childhood eye cancer caused almost entirely by
defects in a gene known as RB1. Other genetic changes within the tumour are also thought …

In pediatric oncology, genetic and genomic tests are proposed throughout the care pathway
for many reasons (eg, cancer characterization, identification of the most appropriate …

Background The visual system becomes more susceptible to conditions causing abnormal
binocular interaction or blurred visual input as it matures during the first six years of life …

Objectives This study aimed to explore the lived experience of parents with children who
have had retinoblastoma. Methods The study adopted a qualitative approach using the data …

Purpose To investigate and report on the quality-of-life (QoL) issues experienced by
caregivers of individuals with childhood glaucoma. Design Exploratory, qualitative study …

At only 20 months old, I was diagnosed with bilateral, heritable retinoblastoma: an
aggressive childhood eye cancer. The news was unexpected, because I was the first person …

Objective Cancer predisposition syndromes are being more frequently recognized in the
etiology of pediatric oncology and genetic‐related technologies are evolving rapidly, leading …

Genomics is rapidly being integrated into the routine care of children and families living with
renal disease, principally as a diagnostic tool but also to direct therapy, identify at-risk …

Background We launched a patient engagement strategy to facilitate research involvement
of the retinoblastoma (childhood eye cancer) community in Canada. To inform our strategy …

Objective: To characterize co** and distress among parents of children with
retinoblastoma, and to uncover their association with perceived health literacy, self-efficacy …