Deconstructing the complexities of advance care planning outcomes: what do we know and where do we go? A sco** review

RD McMahan, I Tellez… - Journal of the American …, 2021‏ - Wiley Online Library
BACKGROUND/OBJECTIVES Advance care planning (ACP) has shown benefit in some, but
not all, studies. It is important to understand the utility of ACP. We conducted a sco** …

Defining a good death (successful dying): literature review and a call for research and public dialogue

EA Meier, JV Gallegos, LPM Thomas, CA Depp… - The American Journal of …, 2016‏ - Elsevier
There is little agreement about what constitutes good death or successful dying. The authors
conducted a literature search for published, English-language, peer-reviewed reports of …

[HTML][HTML] Cross country comparison of expert assessments of the quality of death and dying 2021

EA Finkelstein, A Bhadelia, C Goh, D Baid… - Journal of pain and …, 2022‏ - Elsevier
Context Few efforts have attempted to quantify how well countries deliver end-of-life (EOL)
care. Objectives To score, grade, and rank countries (and Hong Kong and Taiwan) on the …

A brief, patient-and proxy-reported outcome measure in advanced illness: validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS …

FEM Murtagh, C Ramsenthaler, A Firth… - Palliative …, 2019‏ - journals.sagepub.com
Background: Few measures capture the complex symptoms and concerns of those receiving
palliative care. Aim: To validate the Integrated Palliative care Outcome Scale, a measure …

Effect of the serious illness care program in outpatient oncology: a cluster randomized clinical trial

R Bernacki, J Paladino, BA Neville… - JAMA internal …, 2019‏ - jamanetwork.com
Importance High-quality conversations between clinicians and seriously ill patients about
values and goals are associated with improved outcomes but occur infrequently. Objective …

An EAPC white paper on multi-disciplinary education for spiritual care in palliative care

M Best, C Leget, A Goodhead, P Paal - BMC Palliative Care, 2020‏ - Springer
Abstract Background The EAPC White Paper addresses the issue of spiritual care education
for all palliative care professionals. It is to guide health care professionals involved in …

[کتاب][B] Metaphor, cancer and the end of life: A corpus-based study

E Semino, Z Demjén, A Hardie, S Payne, P Rayson - 2017‏ - taylorfrancis.com
This book presents the methodology, findings and implications of a large-scale corpus-
based study of the metaphors used to talk about cancer and the end of life (including care at …

[HTML][HTML] Patient's perspectives on the notion of a good death: a systematic review of the literature

A Krikorian, C Maldonado, T Pastrana - Journal of pain and symptom …, 2020‏ - Elsevier
Context There is no clear definition of what constitutes a good death or its features. Patients,
caregivers, physicians, and relatives have different notions of a good death. Discussions …

Development of the Serious Illness Care Program: a randomised controlled trial of a palliative care communication intervention

R Bernacki, M Hutchings, J Vick, G Smith, J Paladino… - BMJ open, 2015‏ - bmjopen.bmj.com
Introduction Ensuring that patients receive care that is consistent with their goals and values
is a critical component of high-quality care. This article describes the protocol for a cluster …

Symptom burden in heart failure: assessment, impact on outcomes, and management

CM Alpert, MA Smith, SL Hummel, EK Hummel - Heart failure reviews, 2017‏ - Springer
Evidence-based management has improved long-term survival in patients with heart failure
(HF). However, an unintended consequence of increased longevity is that patients with HF …