Strengthening the reporting of observational studies in epidemiology using mendelian randomisation (STROBE-MR): explanation and elaboration

VW Skrivankova, RC Richmond, BAR Woolf… - bmj, 2021 - bmj.com
Mendelian randomisation (MR) studies allow a better understanding of the causal effects of
modifiable exposures on health outcomes, but the published evidence is often hampered by …

Genes, cells, and biobanks: Yes, there's still a consent problem

T Caulfield, B Murdoch - PLoS biology, 2017 - journals.plos.org
From a research perspective, the interest in biobanking continues to intensify. Governments
and industry have invested heavily in biobanks, as exemplified by initiatives like the United …

A systematic literature review of the 'commercialisation effect'on public attitudes towards biobank and genomic data repositories

J Walshe, B Elphinstone, D Nicol… - Public Understanding …, 2024 - journals.sagepub.com
Initiatives that collect and share genomic data to advance health research are widespread
and accelerating. Commercial interests in these efforts, while vital, may erode public trust …

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

R Milne, KI Morley, H Howard, E Niemiec, D Nicol… - Human genetics, 2019 - Springer
Trust may be important in sha** public attitudes to genetics and intentions to participate in
genomics research and big data initiatives. As such, we examined trust in data sharing …

Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review

M Shabani, L Bezuidenhout, P Borry - Expert review of molecular …, 2014 - Taylor & Francis
Aim: Introducing data sharing practices into the genomic research arena has challenged the
current mechanisms established to protect rights of individuals and triggered policy …

Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era

D Chalmers, D Nicol, J Kaye, J Bell, AV Campbell… - BMC medical …, 2016 - Springer
Biobanks have been heralded as essential tools for translating biomedical research into
practice, driving precision medicine to improve pathways for global healthcare treatment and …

Biobanking from the patient perspective

D Mitchell, J Geissler, A Parry-Jones, H Keulen… - Research Involvement …, 2015 - Springer
Abstract Plain English summary Biobanks are collections of donations of biological material
(DNA, cells, tissue etc.) and related data which are very valuable for research into human …

Consolidation of clinical microbiology laboratories and introduction of transformative technologies

O Vandenberg, G Durand, M Hallin… - Clinical microbiology …, 2020 - journals.asm.org
Clinical microbiology is experiencing revolutionary advances in the deployment of
molecular, genome sequencing-based, and mass spectrometry-driven detection …

[HTML][HTML] Organoids for personalized treatment of Cystic Fibrosis: Professional perspectives on the ethics and governance of organoid biobanking

MA Lensink, SN Boers, KR Jongsma, SE Carter… - Journal of Cystic …, 2021 - Elsevier
Background Organoid technology is emerging rapidly as a valuable tool for precision
medicine, particularly in the field of Cystic Fibrosis (CF). However, biobank storage and use …

The impact of commercialisation and genetic data sharing arrangements on public trust and the intention to participate in biobank research

C Critchley, D Nicol, M Otlowski - Public health genomics, 2015 - karger.com
Objectives: The necessity for biobanks to share their resources with third parties poses
potential risks to public trust and the intention to participate in genetic research. We explore …