Despite the plethora of empirical studies conducted to date, debate continues about whether
and to what extent results should be returned to participants of genomic research. We aimed …

Biomedical research based on the sharing and use of ever larger volumes of samples and
data is increasingly becoming an essential component of scientific discovery. The success of …

Background Over the last few decades biobanks have been recognised as institutions that
may revolutionise biomedical research and the development of personalised medicine …

Introduction Personalised prevention using genomic information requires active involvement
from patients and the public, who should be well-informed and empowered to make …

Background Despite the rise of research biobanks in the Middle East, they continue to
struggle with the limited number of donors. Although qualified healthcare professionals may …

Muovendo da una suggestiva consonanza fra genetica e costituzionalismo, l'opera si
presenta come una grammatica della articolata e feconda relazione fra queste due …

Abstract [eng] In this dissertation, the models of a person's consent to biobanking
(hereinafter referred to as 'consent') and the return of health-related findings important to …

Aims: To investigate the attitudes of patients toward the return of individual research results
from scientific research with residual tissue. Methods and Findings: We recruited 1319 …

Scientific medical research involving human samples often leads to improved diagnosis, the
discovery of treatment modalities, or the identification of possible risk factors for many …

Human research ethics committees (HRECs) are evaluating increasing quantities of
genomic research applications with complex ethical considerations. Genomic confidence is …