Sickle cell disease in children and adolescents: a review of the historical, clinical, and public health perspective of sub‐Saharan Africa and beyond

WI Egesa, G Nakalema, WM Waibi… - … Journal of Pediatrics, 2022 - Wiley Online Library
Sickle cell disease (SCD) is an umbrella term for a group of life‐long debilitating autosomal
recessive disorders that are caused by a single‐point mutation (Glu→ Val) that results in …

A program of transition to adult care for sickle cell disease

AC Saulsberry, JS Porter… - Hematology 2014, the …, 2019 - ashpublications.org
Most children with sickle cell disease (SCD) today survive into adulthood. Among emerging
adults, there is a marked increase in acute care utilization and a rise in mortality, which can …

Epidemiology and disease burden of sickle cell disease in France: a descriptive study based on a French nationwide claim database

H Leleu, JB Arlet, A Habibi, M Etienne-Julan… - PLoS …, 2021 - journals.plos.org
Context Sickle cell disease (SCD) is a severe hematological disorder. The most common
acute complication of SCD is vaso-occlusive crisis (VOC), but SCD is a systemic disease …

[HTML][HTML] Development of the incharge health mobile app to improve adherence to hydroxyurea in patients with sickle cell disease: user-centered design approach

NM Alberts, SM Badawy, J Hodges… - JMIR mHealth and …, 2020 - mhealth.jmir.org
Background Sickle cell disease (SCD) is an inherited blood disorder causing acute
complications and chronic progressive end organ damage. SCD is associated with …

Managing the cerebrovascular complications of sickle cell disease: current perspectives

J Light, M Boucher, J Baskin-Miller… - Journal of Blood …, 2023 - Taylor & Francis
The importance of protecting brain function for people with sickle cell disease (SCD) cannot
be overstated. SCD is associated with multiple cerebrovascular complications that threaten …

[HTML][HTML] Characteristics of Emergency Department visits made by individuals with Sickle Cell Disease in the US, 1999–2020

BK Attell, PM Barrett, BS Pace, ML McLemore… - AJPM focus, 2024 - Elsevier
Introduction Individuals living with sickle cell disease experience high levels of morbidity that
result in frequent utilization of the emergency department. The objective of this study was to …

Gaps during pediatric to adult care transfer escalate acute resource utilization in sickle cell disease

KE Howell, M Kayle, MP Smeltzer, VG Nolan… - Blood …, 2024 - ashpublications.org
Guidelines recommend transfer to adult health care within 6 months of completing pediatric
care; however, this has not been studied in sickle cell disease (SCD). We hypothesized that …

Health-care transition: a vital part of care, growth, and change for pediatric patients

LF Davidson, MH Doyle - Pediatrics in review, 2021 - publications.aap.org
Preparing all youth for the transition to adult-oriented care, adulthood itself, and a greater
responsibility for their own health and health-care is an essential part of pediatric care. This …

Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center

ML Hulbert, D Manwani, ER Meier… - Pediatric blood & …, 2023 - Wiley Online Library
Sickle cell disease (SCD) requires coordinated, specialized medical care for optimal
outcomes. There are no United States (US) guidelines that define a pediatric comprehensive …

[HTML][HTML] Characterizing user engagement with a digital intervention for pain self-management among youth with sickle cell disease and their caregivers: subanalysis of …

C Lalloo, F Nishat, W Zempsky, N Bakshi… - Journal of medical …, 2022 - jmir.org
Background Sickle cell disease (SCD) is characterized by severe acute pain episodes as
well as risk for chronic pain. Digital delivery of SCD pain self-management support may …