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Sickle cell disease in children and adolescents: a review of the historical, clinical, and public health perspective of sub‐Saharan Africa and beyond
Sickle cell disease (SCD) is an umbrella term for a group of life‐long debilitating autosomal
recessive disorders that are caused by a single‐point mutation (Glu→ Val) that results in …
recessive disorders that are caused by a single‐point mutation (Glu→ Val) that results in …
A program of transition to adult care for sickle cell disease
AC Saulsberry, JS Porter… - Hematology 2014, the …, 2019 - ashpublications.org
Most children with sickle cell disease (SCD) today survive into adulthood. Among emerging
adults, there is a marked increase in acute care utilization and a rise in mortality, which can …
adults, there is a marked increase in acute care utilization and a rise in mortality, which can …
Epidemiology and disease burden of sickle cell disease in France: a descriptive study based on a French nationwide claim database
Context Sickle cell disease (SCD) is a severe hematological disorder. The most common
acute complication of SCD is vaso-occlusive crisis (VOC), but SCD is a systemic disease …
acute complication of SCD is vaso-occlusive crisis (VOC), but SCD is a systemic disease …
[HTML][HTML] Development of the incharge health mobile app to improve adherence to hydroxyurea in patients with sickle cell disease: user-centered design approach
Background Sickle cell disease (SCD) is an inherited blood disorder causing acute
complications and chronic progressive end organ damage. SCD is associated with …
complications and chronic progressive end organ damage. SCD is associated with …
Managing the cerebrovascular complications of sickle cell disease: current perspectives
J Light, M Boucher, J Baskin-Miller… - Journal of Blood …, 2023 - Taylor & Francis
The importance of protecting brain function for people with sickle cell disease (SCD) cannot
be overstated. SCD is associated with multiple cerebrovascular complications that threaten …
be overstated. SCD is associated with multiple cerebrovascular complications that threaten …
[HTML][HTML] Characteristics of Emergency Department visits made by individuals with Sickle Cell Disease in the US, 1999–2020
Introduction Individuals living with sickle cell disease experience high levels of morbidity that
result in frequent utilization of the emergency department. The objective of this study was to …
result in frequent utilization of the emergency department. The objective of this study was to …
Gaps during pediatric to adult care transfer escalate acute resource utilization in sickle cell disease
Guidelines recommend transfer to adult health care within 6 months of completing pediatric
care; however, this has not been studied in sickle cell disease (SCD). We hypothesized that …
care; however, this has not been studied in sickle cell disease (SCD). We hypothesized that …
Health-care transition: a vital part of care, growth, and change for pediatric patients
LF Davidson, MH Doyle - Pediatrics in review, 2021 - publications.aap.org
Preparing all youth for the transition to adult-oriented care, adulthood itself, and a greater
responsibility for their own health and health-care is an essential part of pediatric care. This …
responsibility for their own health and health-care is an essential part of pediatric care. This …
Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center
ML Hulbert, D Manwani, ER Meier… - Pediatric blood & …, 2023 - Wiley Online Library
Sickle cell disease (SCD) requires coordinated, specialized medical care for optimal
outcomes. There are no United States (US) guidelines that define a pediatric comprehensive …
outcomes. There are no United States (US) guidelines that define a pediatric comprehensive …
[HTML][HTML] Characterizing user engagement with a digital intervention for pain self-management among youth with sickle cell disease and their caregivers: subanalysis of …
Background Sickle cell disease (SCD) is characterized by severe acute pain episodes as
well as risk for chronic pain. Digital delivery of SCD pain self-management support may …
well as risk for chronic pain. Digital delivery of SCD pain self-management support may …