Providing palliative and hospice care to children, adolescents and young adults with cancer

KA Pyke-Grimm, B Fisher, A Haskamp, CJ Bell… - Seminars in oncology …, 2021 - Elsevier
Objectives To describe palliative, concurrent, and hospice care in pediatric oncology in the
United States (US), we present a clinical scenario illustrating palliative and hospice care …

[HTML][HTML] Factors associated with the use of US community–based palliative care for children with life-limiting or life-threatening illnesses and their families: an …

JY Boyden, MAQ Curley, JA Deatrick… - Journal of Pain and …, 2018 - Elsevier
Context As children with life-limiting illnesses (LLIs) and life-threatening illnesses (LTIs) live
longer, challenges to meeting their complex health care needs arise in homes and …

Telehealth acceptability for children, family, and adult hospice nurses when integrating the pediatric palliative inpatient provider during sequential rural home hospice …

MS Weaver, JE Robinson, VK Shostrom… - Journal of palliative …, 2020 - liebertpub.com
Background: Children in rural geographies are not universally able to access pediatric-
trained palliative or hospice providers. Objective: Determine whether telehealth inclusion of …

State of the service: pediatric palliative and hospice community-based service coverage in the United States

MS Weaver, T Chana, D Fisher, H Fost… - Journal of Palliative …, 2023 - liebertpub.com
Background: The pediatric literature describes reliance on community-based organizations
for home-based palliative and hospice care for children. Objective: To quantify and describe …

[HTML][HTML] Home-based care for children with serious illness: ecological framework and research implications

JY Boyden, DL Hill, G LaRagione, J Wolfe, C Feudtner - Children, 2022 - mdpi.com
Care for US children living with serious illness and their families at home is a complex and
patchwork system. Improving home-based care for children and families requires a …

Inequity in palliative care service full utilisation among patients with advanced cancer: a retrospective cohort study

D D'Angelo, M Di Nitto, D Giannarelli, I Croci… - Acta …, 2020 - Taylor & Francis
Background: Advanced cancer patients often die in hospital after receiving needless,
aggressive treatment. Although palliative care improves symptom management, barriers to …

Pediatric hospice and palliative care services and needs across the Northwest United States

JF Bogetz, A Anderson, M Holland… - Journal of Pain and …, 2022 - Elsevier
Context Given workforce and funding constraints, pediatric hospice and palliative care
clinicians often find challenges providing services for seriously ill children and families …

Mental health and developmental disabilities in US children admitted in hospice care

LC Lindley, R Svynarenko… - International journal of …, 2021 - magonlinelibrary.com
Background: Of the 40 000 children who die annually in the US, thousands are admitted to
hospice care. Little is known about the mental health and developmental disabilities of these …

Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a sco** …

P Holder, L Coombes, J Chudleigh… - Palliative …, 2024 - journals.sagepub.com
Background: Palliative care is an essential component of children's health services but is
accessed by fewer children than could potentially benefit. Aim: Appraise the evidence to …

End-of-life transitions and hospice utilization for adolescents: does having a usual source of care matter?

J Keim-Malpass, LC Lindley - Journal of Hospice & Palliative …, 2017 - journals.lww.com
Adolescents with life-limiting illnesses have intensive end-of-life trajectories and could
benefit from initiation of hospice services. The medical home model, which includes having …