Digital health for optimal supportive care in oncology: benefits, limits, and future perspectives

M Aapro, P Bossi, A Dasari, L Fallowfield… - Supportive care in …, 2020 - Springer
Background Digital health provides solutions that capture patient-reported outcomes (PROs)
and allows symptom monitoring and patient management. Digital therapeutics is the …

[HTML][HTML] Big data in healthcare: Conceptual network structure, key challenges and opportunities

LB Furstenau, P Leivas, MK Sott, MS Dohan… - Digital Communications …, 2023 - Elsevier
Big data is a concept that deals with large or complex data sets by using data analysis tools
(eg, data mining, machine learning) to analyze information extracted from several sources …

The limits of empowerment: how to reframe the role of mHealth tools in the healthcare ecosystem

J Morley, L Floridi - Science and engineering ethics, 2020 - Springer
This article highlights the limitations of the tendency to frame health-and wellbeing-related
digital tools (mHealth technologies) as empowering devices, especially as they play an …

Ethical and social reflections on the proposed European Health Data Space

C Staunton, M Shabani, D Mascalzoni… - European Journal of …, 2024 - nature.com
The COVID-19 pandemic demonstrated the benefits of international data sharing. Data
sharing enabled the health care policy makers to make decisions based on real-time data, it …

Fairness in model-sharing games

K Donahue, J Kleinberg - Proceedings of the ACM Web Conference …, 2023 - dl.acm.org
In many real-world situations, data is distributed across multiple self-interested agents.
These agents can collaborate to build a machine learning model based on data from …

What can data trusts for health research learn from participatory governance in biobanks?

R Milne, A Sorbie, M Dixon-Woods - Journal of medical ethics, 2022 - jme.bmj.com
New models of data governance for health data are a focus of growing interest in an era of
challenge to the social licence. In this article, we reflect on what the data trust model, which …

Strategies to promote patient‐centeredness within the healthcare industry: A grey‐based multicriteria decision making methods

M Khosravi, R Izadi, P Shojaei… - Journal of Evaluation in …, 2024 - Wiley Online Library
Rationale The international policy agenda has recently advocated for the development of
patient‐centeredness in healthcare service delivery. Consequently, various stakeholders in …

Emerging health data platforms: From individual control to collective data governance

T Kariotis, MP Ball, BG Tzovaras, S Dennis… - Data & Policy, 2020 - cambridge.org
Health data have enormous potential to transform healthcare, health service design,
research, and individual health management. However, health data collected by institutions …

'It's not something you can take in your hands'. Swiss experts' perspectives on health data ownership: an interview-based study

A Martani, LD Geneviève, B Elger, T Wangmo - BMJ open, 2021 - bmjopen.bmj.com
Objectives The evolution of healthcare and biomedical research into data-rich fields has
raised several questions concerning data ownership. In this paper, we aimed to analyse the …

Models of fairness in federated learning

K Donahue, J Kleinberg - arxiv preprint arxiv:2112.00818, 2021 - arxiv.org
In many real-world situations, data is distributed across multiple self-interested agents.
These agents can collaborate to build a machine learning model based on data from …