Palliative care in interstitial lung disease: living well

M Kreuter, E Bendstrup, AM Russell… - The Lancet …, 2017 - thelancet.com
Progressive fibrotic interstitial lung diseases (ILDs) are characterised by major reductions in
quality of life and survival and have similarities to certain malignancies. However, palliative …

Advance care planning for patients with chronic respiratory diseases: a systematic review of preferences and practices

LJ Jabbarian, M Zwakman, A van der Heide, MC Kars… - Thorax, 2018 - thorax.bmj.com
Background Advance care planning (ACP) supports patients in identifying and documenting
their preferences and timely discussing them with their relatives and healthcare …

[HTML][HTML] Supportive and palliative care in people with cirrhosis: international systematic review of the perspective of patients, family members and health professionals

JTS Low, G Rohde, K Pittordou, B Candy, S Davis… - Journal of …, 2018 - Elsevier
Background & Aims People with cirrhosis have unmet needs, which could benefit from a
palliative care approach. Develo** effective services needs to be based on evidence from …

The clinical and cost effectiveness of a Breathlessness Intervention Service for patients with advanced non-malignant disease and their informal carers: mixed findings …

MC Farquhar, AT Prevost, P McCrone, B Brafman-Price… - Trials, 2016 - Springer
Background Breathlessness is the most common and intrusive symptom of advanced non-
malignant respiratory and cardiac conditions. The Breathlessness Intervention Service (BIS) …

The palliative care needs for fibrotic interstitial lung disease: a qualitative study of patients, informal caregivers and health professionals

S Bajwah, IJ Higginson, JR Ross, AU Wells… - Palliative …, 2013 - journals.sagepub.com
Background: While there have been some studies looking at the impact on quality of life of
patients with idiopathic pulmonary fibrosis, to date no qualitative research looking at the …

Unmet needs in the treatment of idiopathic pulmonary fibrosis―insights from patient chart review in five European countries

TM Maher, M Molina-Molina, AM Russell… - BMC pulmonary …, 2017 - Springer
Background Two antifibrotic drugs, pirfenidone and nintedanib, are approved by the
European Medicines Agency and the US Food and Drug Administration for the treatment of …

Palliative care for patients with advanced fibrotic lung disease: a randomised controlled phase II and feasibility trial of a community case conference intervention

S Bajwah, JR Ross, AU Wells, K Mohammed… - Thorax, 2015 - thorax.bmj.com
Background Those affected by advanced fibrotic interstitial lung diseases (ILDs) have
considerable unmet symptom and psychological needs. Case conferencing has been …

End-of-life care in oxygen-dependent ILD compared with lung cancer: a national population-based study

Z Ahmadi, NG Wysham, S Lundström, C Janson… - Thorax, 2016 - thorax.bmj.com
Rationale Advanced fibrosing interstitial lung disease (ILD) is often progressive and
associated with a high burden of symptoms and poor prognosis. Little is known about the …

The supportive care needs of people living with pulmonary fibrosis and their caregivers: a systematic review

JYT Lee, G Tikellis, TJ Corte, NS Goh… - European …, 2020 - Eur Respiratory Soc
Background People with pulmonary fibrosis often experience a protracted time to diagnosis,
high symptom burden and limited disease information. This review aimed to identify the …

Optimizing quality of life in patients with idiopathic pulmonary fibrosis

MJG van Manen, JJM Geelhoed… - Therapeutic …, 2017 - journals.sagepub.com
Idiopathic pulmonary fibrosis (IPF) is a devastating, progressive and ultimately fatal lung
disease. The combination of poor prognosis, uncertainty of disease course and severe …