The burden of X-linked retinitis pigmentosa on patients and society: a narrative literature review
M Chivers, N Li, F Pan, H Wieffer, R Slowik… - ClinicoEconomics …, 2021 - Taylor & Francis
X-linked retinitis pigmentosa (XLRP) is a severe form of retinitis pigmentosa (RP), a rare,
inherited retinal degenerative disorder, that causes blindness. The aim of this literature …
inherited retinal degenerative disorder, that causes blindness. The aim of this literature …
Systematic review and meta-synthesis of co** with retinitis pigmentosa: implications for improving quality of life
G Garip, A Kamal - BMC ophthalmology, 2019 - Springer
Background Retinitis pigmentosa (RP) are a group of incurable and inherited eye
conditions, and the leading cause of inherited blindness in people under the age of 60. The …
conditions, and the leading cause of inherited blindness in people under the age of 60. The …
Co** strategies, vision-related quality of life, and emotional health in managing retinitis pigmentosa: a survey study
Background Retinitis pigmentosa is a group of genetic progressive retinal dystrophies that
may adversely affect daily life. Those with RP should develop adaptive co** strategies to …
may adversely affect daily life. Those with RP should develop adaptive co** strategies to …
Psychological aspects and depression in patients with symptomatic keratoconus
MM Moschos, NS Gouliopoulos… - Journal of …, 2018 - Wiley Online Library
Purpose. To assess the psychological status of keratoconus sufferers and to determine the
relationship between depression and visual impairment in this group of patients. Methods …
relationship between depression and visual impairment in this group of patients. Methods …
The Michigan vision-related anxiety questionnaire: a psychosocial outcomes measure for inherited retinal degenerations
Objective We sought to construct and validate a patient-reported outcome measure for
screening and monitoring vision-related anxiety in patients with inherited retinal …
screening and monitoring vision-related anxiety in patients with inherited retinal …
Psychological aspects and depression in patients with retinitis pigmentosa
M Moschos, A Chatzirallis… - European Journal of …, 2015 - journals.sagepub.com
Purpose To assess the psychological impact and the potential relationship between
depression and visual impairment in patients with retinitis pigmentosa (RP). Methods Our …
depression and visual impairment in patients with retinitis pigmentosa (RP). Methods Our …
Validation of a vision-related activity scale for patients with retinitis pigmentosa
Purpose There have been few systematic reports of vision-related activity limitations of
people with retinitis pigmentosa (RP). We report a merging of data from the National Eye …
people with retinitis pigmentosa (RP). We report a merging of data from the National Eye …
[HTML][HTML] Managing Retinitis Pigmentosa: A Literature Review of Current Non-Surgical Approaches
L Colombo, J Baldesi, S Martella, C Quisisana… - Journal of Clinical …, 2025 - mdpi.com
Retinitis pigmentosa (RP) is a heterogeneous group of inherited retinal diseases
characterized by the progressive loss of photoreceptor function, visual impairment, and …
characterized by the progressive loss of photoreceptor function, visual impairment, and …
Anxiety and depression in patients with retinitis pigmentosa
Purpose: Retinitis pigmentosa (RP) is a chronic progressive disease with no curative
treatments. Understanding the variables involved with improving patients' quality of life is …
treatments. Understanding the variables involved with improving patients' quality of life is …
Living with type I Usher syndrome: insights from patients and their parents
A Roborel de Climens, B Tugaut, A Piscopo… - Ophthalmic …, 2020 - Taylor & Francis
ABSTRACT Background Type 1 Usher syndrome (USH1) is a rare disease and major cause
of genetic deaf-blindness. Deafness is present from birth while retinitis pigmentosa (RP) …
of genetic deaf-blindness. Deafness is present from birth while retinitis pigmentosa (RP) …