Selection bias on intellectual ability in autism research: A cross-sectional review and meta-analysis

G Russell, W Mandy, D Elliott, R White, T Pittwood… - Molecular autism, 2019 - Springer
Background Current global estimates suggest the proportion of the population with autism
spectrum disorder (ASD) who have intellectual disability (ID) is approximately 50%. Our …

Inclusive research and intellectual disabilities: Moving forward on a road less well-travelled

P O'Brien, E Garcia Iriarte, R Mc Conkey, S Butler… - Social Sciences, 2022 - mdpi.com
In reflecting on the title of the special issue: Inclusive Research: A road less or more well-
travelled, this paper reviews the strengths of inclusive research that have augmented the …

[PDF][PDF] A new paradigm in the field of intellectual and developmental disabilities: Characteristics and evaluation

LE Gómez Sánchez, RL Schalock, MÁ Verdugo - Psicothema, 2021 - digibuo.uniovi.es
Resumen Background: A new paradigm, which we refer to as The Quality of Life Supports
Paradigm, is emerging internationally in the field of intellectual and developmental …

Doing research inclusively: Understanding what it means to do research with and alongside people with profound intellectual disabilities

C de Haas, J Grace, J Hope, M Nind - Social Sciences, 2022 - mdpi.com
Positive developments in inclusion in line with 'Nothing about us without us' have rarely
extended to people with profound intellectual disabilities. Advances in inclusive research …

“That felt like real engagement”: Fostering and maintaining inclusive research collaborations with individuals with intellectual disability

AE Schwartz, JM Kramer, ES Cohn… - Qualitative health …, 2020 - journals.sagepub.com
People with intellectual disability (ID) are increasingly involved in stakeholder-engaged
research, such as “inclusive research”(IR). To understand the processes that foster and …

A consensus statement on how to conduct inclusive health research

TK Frankena, J Naaldenberg, M Cardol… - Journal of …, 2019 - Wiley Online Library
Background The active involvement of people with intellectual disabilities in research, or
inclusive research, is relatively common. However, inclusive health research is less …

A collaborative group method of inclusive research

C Bigby, P Frawley… - Journal of Applied …, 2014 - Wiley Online Library
Background Funding bodies in A ustralia and the U nited K ingdom require research on
issues that affect the lives of people with intellectual disability to be inclusive. Debate …

From 'on'to 'with'to 'by:'People with a learning disability creating a space for the third wave of inclusive research

P Milner, P Frawley - Qualitative Research, 2019 - journals.sagepub.com
For people with a learning disability, Inclusive Research is promoted as the right way to
redress the hermeneutical injustice of their voices and theorising being excluded from the …

Changes in the lives of people with profound intellectual and multiple disabilities

M Nind, I Strnadova - … for People with Profound Intellectual and …, 2020 - taylorfrancis.com
Melanie Nind and Iva Strnadová's opening chapter provides the context of the last five
decades in relation to the lives of children and adults with profound intellectual and multiple …

A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities: How are co‐researchers involved and …

O Hewitt, PE Langdon, K Tapp… - Journal of Applied …, 2023 - Wiley Online Library
Background Using inclusive research methods with people with intellectual disabilities is
increasingly common. A recent consensus statement identified key elements when …