Challenges in navigating the health care system: development of an instrument measuring navigation health literacy

L Griese, EM Berens, P Nowak, JM Pelikan… - International Journal of …, 2020 - mdpi.com
Due to their rapid expansion and complexity, it is increasingly difficult for patients to orient
themselves in health care systems. Therefore, patients require a high degree of health …

“Falling between the cracks”: Experiences of Black dementia caregivers navigating US health systems

K Alexander, S Oliver, SG Bennett… - Journal of the …, 2022 - Wiley Online Library
In addition to numerous care responsibilities, family caregivers are expected to navigate
health systems and engage in healthcare management tasks on behalf of their persons …

Exploring family caregiver communication difficulties and caregiver quality of life and anxiety

E Wittenberg, AM Kerr… - American Journal of …, 2021 - journals.sagepub.com
Background: When family caregivers are involved in patient care, both patients and
caregivers experience better clinical outcomes. However, caregivers experience …

Caregiver burden in adult solid organ transplantation

LX Deng, A Sharma, SM Gedallovich, P Tandon… - …, 2023 - journals.lww.com
The informal caregiver plays a critical role in supporting patients with various end-stage
diseases throughout the solid organ transplantation journey. Caregiver responsibilities …

Factors associated with low health literacy in unpaid caregivers of older people: a systematic review

MA Maximiano-Barreto, LCS Alves… - Health Promotion …, 2024 - academic.oup.com
Health literacy is a public health issue. Unpaid caregivers of older people with low health
literacy may have difficulties providing care, exerting a negative impact on the care process …

Receipt of posthospitalization care training among Medicare beneficiaries' family caregivers

JG Burgdorf, CD Fabius, C Riffin, JL Wolff - JAMA Network Open, 2021 - jamanetwork.com
Importance Medicare conditions of participation require hospitals to provide training to family
and unpaid caregivers when their support is necessary to enact the postdischarge care plan …

The COMFORT communication model: a nursing resource to advance health literacy in organizations

JV Goldsmith, E Wittenberg… - Journal of Hospice & …, 2020 - journals.lww.com
The COMFORT Model has recently been revised based on feedback from bedside nurses
working in palliative care and oncology and includes the following components: Connect …

Caregiver role development in chronic disease: A qualitative study of informal caregiving for veterans with diabetes

B Fields, L Makaroun, KL Rodriguez… - Chronic …, 2022 - journals.sagepub.com
Objective Support for chronic conditions such as diabetes from friends and family positively
influences health management and outcomes, but limited data exist on how and why …

[LIVRE][B] Caring for the family caregiver

E Wittenberg, J Goldsmith, SL Ragan, TA Parnell - 2020 - books.google.com
Caring for the Family Caregiver examines the high cost and poorly addressed exigencies of
the family caregiver in chronic illness, including health literacy, palliative care, and health …

[HTML][HTML] Validation of the mild cognitive impairment health literacy assessment scale (MCI-HLA scale) in middle-aged and older adults

F Han, Y Hu, Y Feng, L Qian, J Sun - Asian Journal of Psychiatry, 2023 - Elsevier
Objectives Health literacy (HL) is associated with early prevention of mild cognitive
impairment (MCI), but a targeted comprehensive assessment tool is lacking. This study aims …