Parent education programmes for special health care needs children: a systematic review

AC Jackson, RPT Liang, E Frydenberg… - Journal of Clinical …, 2016 - Wiley Online Library
Aims and objectives The aim of this review was to examine parent education programmes
for families with children with special health care needs, to better design interventions …

Caregiver coaching in early intervention: A sco** review

FM Seruya, E Feit, A Tirado… - The American Journal …, 2022 - research.aota.org
Importance: Best practice guidelines and legal mandates have deemed parent engagement
an essential component of early intervention (EI). Parent coaching is an intervention and a …

[HTML][HTML] Community health workers as support for sickle cell care

LL Hsu, NS Green, ED Ivy, CE Neunert… - American journal of …, 2016 - Elsevier
Community health workers are increasingly recognized as useful for improving health care
and health outcomes for a variety of chronic conditions. Community health workers can …

Prevalence of developmental delay and contributing factors among children with sickle cell disease

CH Drazen, R Abel, M Gabir, G Farmer… - Pediatric blood & …, 2016 - Wiley Online Library
Background Children with sickle cell disease (SCD) are at higher risk for deficits in cognition
compared to the general population, even at young ages. Disease severity has been co …

A pilot study of parent education intervention improves early childhood development among toddlers with sickle cell disease

ME Fields, C Hoyt‐Drazen, R Abel… - Pediatric blood & …, 2016 - Wiley Online Library
Background Young children with sickle cell disease (SCD) are at risk for cognitive delay. In
addition to biologic risk factors associated with SCD, environmental factors contribute to …

Perspectives on how to implement developmental screening and intervention for children with sickle cell disease

CR Hoyt, J Erickson, L Luo… - Journal of Early …, 2024 - journals.sagepub.com
Background: Children with sickle cell disease (SCD), a genetic blood disorder, are at
increased risk of developmental delays but are not routinely referred to Early Intervention …

[HTML][HTML] Experiences and problems encountered by families of children with sickle cell anemia

G Karadağ, Z Güngörmüş, Z Olçar - Journal of Caring Sciences, 2018 - ncbi.nlm.nih.gov
Abstract Introduction: Sickle Cell Anemia is a disease that has a high level of morbidity and
early mortality for patients that are not followed and controlled properly. Study was …

[HTML][HTML] Effect of a mobile-phone mediated based education on self-care behaviors of patients with thalassemia major

F Gharaati, T Aghamolaei, SH Davoodi… - Journal of Caring …, 2019 - ncbi.nlm.nih.gov
Introduction: One way to improve the quality of life of the patients with thalassemia major is
to enable them through education. The present research aimed to explore the effects of an …

Commentary on the ASH 2020 guidelines on cognitive screening and intervention in sickle cell disease

CR Hoyt, AM Heitzer, SJ Hardy - Blood advances, 2023 - ashpublications.org
Commentary on the ASH 2020 guidelines on cognitive screening and intervention in sickle cell
disease | Blood Advances | American Society of Hematology Skip to Main Content …

Developmental screening in pediatric sickle cell disease: Disease-related risk and screening outcomes in 4 year olds

J Schatz, A Schlenz, L Reinman, K Smith… - … of Developmental & …, 2017 - journals.lww.com
Objective: Studies of early child development in sickle cell disease (SCD) have found
modest associations between disease-related risks and developmental status in infants and …