What do bereaved parents want from professionals after the sudden death of their child: a systematic review of the literature

J Garstang, F Griffiths, P Sidebotham - BMC pediatrics, 2014 - Springer
Background The death of a child is a devastating event for parents. In many high income
countries, following an unexpected death, there are formal investigations to find the cause of …

Understanding the bereavement experience of grandparents following the death of a grandchild from a life‐limiting condition: A meta‐ethnography

MJ Tatterton, C Walshe - Journal of advanced nursing, 2019 - Wiley Online Library
Aim To increase understanding of grandparental grief following the death of a grandchild
from a life‐limiting condition. Design Meta‐ethnography. Data sources Academic Search …

[KNIHA][B] End of life care in the ICU: from advanced disease to bereavement

G Rocker - 2010 - books.google.com
The Oxford Specialist Handbooks series provides readers with clear, concise information on
all that is needed to successfully train in the medical sub-specialties. Each book gives an …

End-of-life care in intellectual disability: a retrospective cross-sectional study

K Hunt, J Bernal, R Worth, J Shearn… - BMJ Supportive & …, 2020 - spcare.bmj.com
Background Adults with intellectual disability (ID) experience inequality in access to
healthcare that is considered to extend to end-of-life care. Their experiences of healthcare at …

Should mental health nurses cry with patients?

BA Hayward - Issues in Mental Health Nursing, 2024 - Taylor & Francis
I have been practicing as a mental health nurse for over 22 years in a variety of clinical and
non-clinical roles, from acute to community, with children, adolescents, and adults, and in …

Disenfranchised grief and families' experiences of death after police contact in the United States

D Baker, D Norris, V Cherneva - OMEGA-Journal of death …, 2021 - journals.sagepub.com
This article examines the experiences of family members when a loved one dies after police
contact in the United States. It uses qualitative data from semistructured interviews with the …

'When your child dies you don't belong in that world any more'–Experiences of mothers whose child with an intellectual disability has died

DE Reilly, JC Huws, RP Hastings… - Journal of Applied …, 2008 - Wiley Online Library
Background Individuals with intellectual disability are at higher risk of premature death
compared with individuals without intellectual disability, and therefore parents of people with …

Paediatric palliative care and intellectual disability—a unique context

JK Duc, AR Herbert, HS Heussler - Journal of Applied Research …, 2017 - Wiley Online Library
Background Paediatric palliative care is a nuanced area of practice with additional
complexities in the context of intellectual disability. There is currently minimal research to …

Agency, social and healthcare supports for adults with intellectual disability at the end of life in out‐of‐home, non‐institutional community residences in Western …

TT Moro, TA Savage, S Gehlert - Journal of Applied Research …, 2017 - Wiley Online Library
Background The nature and quality of end‐of‐life care received by adults with intellectual
disabilities in out‐of‐home, non‐institutional community agency residences in Western …

Losing a child with a severe developmental intellectual disability: Israeli mothers' accounts.

M Mahat-Shamir, S Huri-Rotman - American Journal of …, 2024 - psycnet.apa.org
Caring for a child with a severe developmental intellectual disability is often extremely
challenging. Consequently, if such a child passes away, the grieving process may be …