Health outcomes of parents of children with chronic illness: a systematic review and meta-analysis

LN Cohn, P Pechlivanoglou, Y Lee, S Mahant… - The Journal of …, 2020 - Elsevier
Objective To assess health outcomes of parents caring for children with chronic illnesses
compared with parents of healthy children. Study design We searched OvidSP MEDLINE …

The 'F‐words' in childhood disability: I swear this is how we should think!

P Rosenbaum, JW Gorter - Child: care, health and …, 2012 - Wiley Online Library
The 21st century is witnessing a sea change in our thinking about 'disability'. Nowhere are
these developments more apparent than in the field of childhood disability, where traditional …

Status complexicus? The emergence of pediatric complex care

E Cohen, JG Berry, L Sanders, EL Schor, PH Wise - Pediatrics, 2018 - publications.aap.org
Discourse about childhood chronic conditions has transitioned in the last decade from
focusing primarily on broad groups of children with special health care needs to …

A systematic review of the association between co** strategies and quality of life among caregivers of children with chronic illness and/or disability

A Fairfax, J Brehaut, I Colman, L Sikora, A Kazakova… - BMC pediatrics, 2019 - Springer
Background Parents of children with chronic illness have reported decreased psychological
and physical quality of life (QoL) relative to parents of children without such illness, which …

Children with a rare congenital genetic disorder: a systematic review of parent experiences

C von der Lippe, I Neteland, KB Feragen - Orphanet Journal of Rare …, 2022 - Springer
Background Caring for a child with a chronic disease may be demanding and stressful.
When a child has a rare condition, the impact of care on parents is amplified due to the rarity …

Peer support for parents of children with chronic disabling conditions: a systematic review of quantitative and qualitative studies

V Shilling, C Morris, J Thompson‐Coon… - … medicine & child …, 2013 - Wiley Online Library
AIM To review the qualitative and quantitative evidence of the benefits of peer support for
parents of children with disabling conditions in the context of health, well‐being, impact on …

Supporting parent caregivers of children with life-limiting illness

KD Koch, BL Jones - Children, 2018 - mdpi.com
The well-being of parents is essential to the well-being of children with life-limiting illness.
Parents are vulnerable to a range of negative financial, physical, and psychosocial issues …

The impact of chronic physical illness, maternal depressive symptoms, family functioning, and self-esteem on symptoms of anxiety and depression in children

MA Ferro, MH Boyle - Journal of abnormal child psychology, 2015 - Springer
The present study extends earlier research identifying an increased risk of anxiety among
children with chronic physical illness (CwCPI) by examining a more complete model that …

Chronic stress and health among parents of children with intellectual and developmental disabilities

N Miodrag, RM Hodapp - Current opinion in psychiatry, 2010 - journals.lww.com
Chronic stressors can wear down the body, particularly the cardiovascular, immune, and
gastrointestinal systems. So far, increased rates of caregiver health problems have been …

The clinical definition of children with medical complexity: a modified Delphi study

K Millar, C Rodd, G Rempel, E Cohen, KM Sibley… - …, 2024 - publications.aap.org
Video Abstract BACKGROUND AND OBJECTIVES Children with medical complexity (CMC)
comprise a subgroup of children with severe chronic diseases. A conceptual definition for …