Patients' expectations about effects of chemotherapy for advanced cancer

JC Weeks, PJ Catalano, A Cronin… - … England Journal of …, 2012 - Mass Medical Soc
Background Chemotherapy for metastatic lung or colorectal cancer can prolong life by
weeks or months and may provide palliation, but it is not curative. Methods We studied 1193 …

Communication with children and adolescents about the diagnosis of their own life-threatening condition

A Stein, L Dalton, E Rapa, M Bluebond-Langner… - The Lancet, 2019 - thelancet.com
When a child is diagnosed with a life-threatening condition, one of the most challenging
tasks facing health-care professionals is how to communicate this to the child, and to their …

Outcomes of prognostic disclosure: associations with prognostic understanding, distress, and relationship with physician among patients with advanced cancer

AC Enzinger, B Zhang, D Schrag… - Journal of clinical …, 2015 - ascopubs.org
Purpose To determine how prognostic conversations influence perceptions of life
expectancy (LE), distress, and the patient-physician relationship among patients with …

Longitudinal perceptions of prognosis and goals of therapy in patients with metastatic non–small-cell lung cancer: Results of a randomized study of early palliative …

JS Temel, JA Greer, S Admane… - Journal of clinical …, 2011 - ascopubs.org
Purpose Understanding of prognosis among terminally ill patients impacts medical decision
making. The aims of this study were to explore perceptions of prognosis and goals of …

Sex, health, and years of sexually active life gained due to good health: evidence from two US population based cross sectional surveys of ageing

ST Lindau, N Gavrilova - BMj, 2010 - bmj.com
Objectives To examine the relation between health and several dimensions of sexuality and
to estimate years of sexually active life across sex and health groups in middle aged and …

Symptoms and distress in children with advanced cancer: prospective patient-reported outcomes from the PediQUEST study

J Wolfe, L Orellana, C Ullrich, EF Cook… - Journal of Clinical …, 2015 - ascopubs.org
Purpose Thousands of children are living with advanced cancer; yet patient-reported
outcomes (PROs) have rarely been used to describe their experiences. We aimed to …

A research agenda for communication between health care professionals and patients living with serious illness

JA Tulsky, MC Beach, PN Butow… - JAMA internal …, 2017 - jamanetwork.com
Importance Poor communication by health care professionals contributes to physical and
psychological suffering in patients living with serious illness. Patients may not fully …

Pediatric palliative care

BP Himelstein, JM Hilden, AM Boldt… - New England Journal …, 2004 - Mass Medical Soc
Each year, 500,000 children in the United States cope with life-threatening illness. These
children and their families require comprehensive, compassionate, and developmentally …

When children die: Improving palliative and end-of-life care for children and their families

RE Behrman, MJ Field - 2003 - books.google.com
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-
altering experience. Except for the child who dies suddenly and without forewarning …

Patients' and parents' needs, attitudes, and perceptions about early palliative care integration in pediatric oncology

DR Levine, BN Mandrell, A Sykes, M Pritchard… - JAMA …, 2017 - jamanetwork.com
Importance Early palliative care integration for cancer patients is now touted as the optimal
care model, yet significant barriers often prevent its implementation. A perceived barrier …