[HTML][HTML] Economic evaluations of remote patient monitoring for chronic disease: a systematic review

KR De Guzman, CL Snoswell, ML Taylor, LC Gray… - Value in Health, 2022 - Elsevier
Objectives This study aimed to systematically review and summarize economic evaluations
of noninvasive remote patient monitoring (RPM) for chronic diseases compared with usual …

The case for open science: rare diseases

YR Rubinstein, PN Robinson, WA Gahl, P Avillach… - JAMIA …, 2020 - academic.oup.com
Abstract The premise of Open Science is that research and medical management will
progress faster if data and knowledge are openly shared. The value of Open Science is …

A feasibility study of urgent implementation of cystic fibrosis multidisciplinary telemedicine clinic in the face of COVID-19 pandemic: single-center experience

M Compton, M Soper, B Reilly, L Gettle… - Telemedicine and e …, 2020 - liebertpub.com
Introduction: The coronavirus 2019 (COVID-19) pandemic has become a major world health
problem. All US states have advised their cystic fibrosis (CF) populations to socially isolate …

Strategies to optimize treatment adherence in adolescent patients with cystic fibrosis

LC Bishay, GS Sawicki - Adolescent health, medicine and …, 2016 - Taylor & Francis
While development of new treatments for cystic fibrosis (CF) has led to a significant
improvement in survival age, routine daily treatment for CF is complex, burdensome, and …

[HTML][HTML] Patient and family experience of telehealth care delivery as part of the CF chronic care model early in the COVID-19 pandemic

GM Solomon, J Bailey, J Lawlor, P Scalia… - Journal of cystic …, 2021 - Elsevier
Background During the COVID-19 pandemic, CF centers shifted to a telehealth delivery
model. Our study aimed to determine how people with CF (PwCF) and their families …

Emerging alternatives to conventional clinic visits in the era of COVID-19: adoption of telehealth at VCU adult cystic fibrosis center

C Womack, R Farsin, M Farsad… - International journal of …, 2020 - Taylor & Francis
Cystic fibrosis (CF) is a genetic disease in which consistent follow-up care is required to
avoid a decline in pulmonary and nutritional health. It is believed that if a CF patient ceases …

A multi-centre, randomized, controlled trial on coaching and telemonitoring in patients with cystic fibrosis: conneCT CF

S Thee, M Stahl, R Fischer, S Sutharsan… - BMC Pulmonary …, 2021 - Springer
Background The extend of lung disease remains the most important prognostic factor for
survival in patients with cystic fibrosis (CF), and lack of adherence is the main reason for …

The feasibility of online video calling to engage patients with cystic fibrosis in exercise training

OW Tomlinson, J Shelley, J Trott… - … of telemedicine and …, 2020 - journals.sagepub.com
Introduction Physical activity, including structured exercise, is an essential component in the
management of cystic fibrosis. The use of telehealth such as video-calling may be a useful …

[HTML][HTML] Telemedicine in cystic fibrosis

ME Desimone, J Sherwood, SC Soltman… - Journal of Clinical & …, 2021 - Elsevier
Cystic Fibrosis (CF) requires lifetime multidisciplinary care to manage both pulmonary and
extra pulmonary manifestations. The median age of survival for people with CF is rising and …

Missed opportunities in preventing hospital readmissions: Redesigning post‐discharge checkup policies

X Liu, M Hu, JE Helm, MS Lavieri… - Production and …, 2018 - journals.sagepub.com
Hospital readmissions affect hundreds of thousands of patients every year, negatively
impacting patients and placing a tremendous burden on the national healthcare system …