'A constant black cloud': the emotional impact of informal caregiving for someone with a lower-grade glioma

B Rimmer, M Balla, L Dutton, J Lewis… - Qualitative Health …, 2024 - journals.sagepub.com
Those closest to people with lower-grade gliomas (LGGs) often assume the role of informal
caregiver (IC). The additional responsibilities mean ICs of people with cancer can …

Caregiver burden and influencing factors among family caregivers of patients with glioma: a cross-sectional survey

Q Li, L Zhang, C Chen, Y Gan, L Jiang, S Li… - Journal of Clinical …, 2022 - Elsevier
Objective The main responsibility of caring for patients with glioma is assumed by family
caregivers who experience a considerable burden during the care process. This study …

The experience of caregiving for adults with benign brain tumors: An integrative review

AK McDaniel, B Carlson, IF Dunn… - Neuro-Oncology …, 2024 - academic.oup.com
Background Caregiving for the adult benign brain tumor (aBBT) population is unique, as
patients' extended period of survivorship poses significant challenges related to the long …

Unmet needs and wish for support of family caregivers of primary brain tumor patients

L Pointon, R Grant, S Peoples, S Erridge… - Neuro-Oncology …, 2023 - academic.oup.com
Background Most primary brain tumor patients rely on family caregivers for support.
Caregiving can be rewarding, but also leads to significant burden from unmet needs. We …

Perceptions of social support and relationships while living with a brain tumour: a qualitative study

A Zanotto, K Goodall, M Ellison, C McVittie - Psychology & Health, 2023 - Taylor & Francis
Objective Having a brain tumour can disrupt social roles and networks. Despite growing
evidence on the significance of social support in adjustment to chronic illness, research …

Cognition and health-related quality of life in long-term survivors of high-grade glioma: an interactive perspective from patient and caregiver

JKH Spoor, M Donders-Kamphuis, WS Veenstra… - Acta …, 2024 - Springer
Background The health-related quality of life (HRQoL) and cognition are important indicators
for the quality of survival in patients with high-grade glioma (HGG). However, data on long …

Status and influencing factors of disease uncertainty among family caregivers of patients with moderate and severe craniocerebral injury: a quantitative and qualitative …

J Zhang, Y Li, Y Gu, Y Fei, G Yang, Y Gu, X Xu - Acta Neurochirurgica, 2022 - Springer
Background Disease uncertainty widely exists among family caregivers of patients with
moderate and severe craniocerebral injury. This negative emotional reaction will reduce the …

[HTML][HTML] Health-Related Quality of Life and Treatment Satisfaction of Patients with Malignant IDH Wild-Type Gliomas and Their Caregivers

A Fischl, M Gerken, P Lindberg-Scharf… - Current …, 2024 - mdpi.com
(1) Background: Clinical aspects like sex, age, Karnofsky Performance Scale (KPS) and
psychosocial distress can affect the health-related quality of life (HR-QoL) and treatment …

Diagnostic journey and life impact of cholangiocarcinoma: results from surveys of patient and caregiver experiences

K Bibeau, TD Jackson, M Bachini, A Lindley… - Future …, 2024 - Taylor & Francis
Aim: To understand cholangiocarcinoma symptoms, diagnosis and treatment experience
from the patient and caregiver perspective, including cholangiocarcinoma's impact on daily …

Measuring everyday functioning in patients with brain tumor: The long rows yet to hoe

JS Wefel, SP Woods - Neuro-Oncology Practice, 2022 - academic.oup.com
Oort et al are in the process of develo** a 32-item instrumental activities of daily living
(IADL) questionnaire (EORTC IADL-BN 32) that they hope will be a reliable and valid …