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'A constant black cloud': the emotional impact of informal caregiving for someone with a lower-grade glioma
B Rimmer, M Balla, L Dutton, J Lewis… - Qualitative Health …, 2024 - journals.sagepub.com
Those closest to people with lower-grade gliomas (LGGs) often assume the role of informal
caregiver (IC). The additional responsibilities mean ICs of people with cancer can …
caregiver (IC). The additional responsibilities mean ICs of people with cancer can …
Caregiver burden and influencing factors among family caregivers of patients with glioma: a cross-sectional survey
Q Li, L Zhang, C Chen, Y Gan, L Jiang, S Li… - Journal of Clinical …, 2022 - Elsevier
Objective The main responsibility of caring for patients with glioma is assumed by family
caregivers who experience a considerable burden during the care process. This study …
caregivers who experience a considerable burden during the care process. This study …
The experience of caregiving for adults with benign brain tumors: An integrative review
AK McDaniel, B Carlson, IF Dunn… - Neuro-Oncology …, 2024 - academic.oup.com
Background Caregiving for the adult benign brain tumor (aBBT) population is unique, as
patients' extended period of survivorship poses significant challenges related to the long …
patients' extended period of survivorship poses significant challenges related to the long …
Unmet needs and wish for support of family caregivers of primary brain tumor patients
Background Most primary brain tumor patients rely on family caregivers for support.
Caregiving can be rewarding, but also leads to significant burden from unmet needs. We …
Caregiving can be rewarding, but also leads to significant burden from unmet needs. We …
Perceptions of social support and relationships while living with a brain tumour: a qualitative study
Objective Having a brain tumour can disrupt social roles and networks. Despite growing
evidence on the significance of social support in adjustment to chronic illness, research …
evidence on the significance of social support in adjustment to chronic illness, research …
Cognition and health-related quality of life in long-term survivors of high-grade glioma: an interactive perspective from patient and caregiver
JKH Spoor, M Donders-Kamphuis, WS Veenstra… - Acta …, 2024 - Springer
Background The health-related quality of life (HRQoL) and cognition are important indicators
for the quality of survival in patients with high-grade glioma (HGG). However, data on long …
for the quality of survival in patients with high-grade glioma (HGG). However, data on long …
Status and influencing factors of disease uncertainty among family caregivers of patients with moderate and severe craniocerebral injury: a quantitative and qualitative …
J Zhang, Y Li, Y Gu, Y Fei, G Yang, Y Gu, X Xu - Acta Neurochirurgica, 2022 - Springer
Background Disease uncertainty widely exists among family caregivers of patients with
moderate and severe craniocerebral injury. This negative emotional reaction will reduce the …
moderate and severe craniocerebral injury. This negative emotional reaction will reduce the …
[HTML][HTML] Health-Related Quality of Life and Treatment Satisfaction of Patients with Malignant IDH Wild-Type Gliomas and Their Caregivers
A Fischl, M Gerken, P Lindberg-Scharf… - Current …, 2024 - mdpi.com
(1) Background: Clinical aspects like sex, age, Karnofsky Performance Scale (KPS) and
psychosocial distress can affect the health-related quality of life (HR-QoL) and treatment …
psychosocial distress can affect the health-related quality of life (HR-QoL) and treatment …
Diagnostic journey and life impact of cholangiocarcinoma: results from surveys of patient and caregiver experiences
K Bibeau, TD Jackson, M Bachini, A Lindley… - Future …, 2024 - Taylor & Francis
Aim: To understand cholangiocarcinoma symptoms, diagnosis and treatment experience
from the patient and caregiver perspective, including cholangiocarcinoma's impact on daily …
from the patient and caregiver perspective, including cholangiocarcinoma's impact on daily …
Measuring everyday functioning in patients with brain tumor: The long rows yet to hoe
Oort et al are in the process of develo** a 32-item instrumental activities of daily living
(IADL) questionnaire (EORTC IADL-BN 32) that they hope will be a reliable and valid …
(IADL) questionnaire (EORTC IADL-BN 32) that they hope will be a reliable and valid …