Meta-analysis: Caregiver and youth uncertainty in pediatric chronic illness

L Szulczewski, LL Mullins, SL Bidwell… - Journal of Pediatric …, 2017 - academic.oup.com
Objective To conduct a systematic review on the construct of illness uncertainty in caregivers
and youth as related to the following: demographic and illness variables, psychological …

Possible consequences of a shortage of hydroxychloroquine for patients with systemic lupus erythematosus amid the COVID-19 pandemic

CA Peschken - The Journal of Rheumatology, 2020 - jrheum.org
As the coronavirus disease 2019 (COVID-19; the disease caused by SARS-CoV-2)
pandemic took hold in North America, rheumatology clinics across the continent were …

How does uncertainty shape patient experience in advanced illness? A secondary analysis of qualitative data

SN Etkind, K Bristowe, K Bailey, LE Selman… - Palliative …, 2017 - journals.sagepub.com
Background: Uncertainty is common in advanced illness but is infrequently studied in this
context. If poorly addressed, uncertainty can lead to adverse patient outcomes. Aim: We …

Models of resilience: Develo** psychosocial interventions for parents of children with chronic health conditions

LL Mullins, ES Molzon, KI Suorsa, AP Tackett… - Family …, 2015 - Wiley Online Library
Research regarding family adaption and resilience in children with chronic health conditions
has resulted in the development of a number of theoretical models and data‐driven …

Aging with HIV and disability: the role of uncertainty

P Solomon, K O'Brien, S Wilkins, N Gervais - AIDS care, 2014 - Taylor & Francis
Due to advances in treatment, people with HIV are living longer and develo** disabilities
related to the virus, adverse side effects of medications, and aging. Illness-related …

Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors:“Cascade”

CE Wakefield, UM Sansom-Daly, BC McGill… - Supportive Care in …, 2016 - Springer
Purpose The aim of this study was to evaluate the feasibility and acceptability of “Cascade”:
an online, group-based, cognitive behavioral therapy intervention, delivered “live” by a …

'It's a double whammy': A qualitative study of illness uncertainty in individuals with Parkinson's disease in the context of COVID-19

J Simpson, N Zarotti, S Varey, E Anestis… - Chronic …, 2022 - journals.sagepub.com
Objectives The purpose of this study was to explore the experiences of individuals with
Parkinson's through the theoretical lens of illness uncertainty during the first UK full …

Biased interpretation of ambiguous information in patients with chronic pain: A systematic review and meta-analysis of current studies.

DE Schoth, C Liossi - Health Psychology, 2016 - psycnet.apa.org
Objective: The aim of this review is to provide a synthesis of studies exploring biased
interpretation of ambiguous information in individuals with chronic pain, and to meta-analyze …

Existential uncertainty in health care: A concept analysis

C Dwan, C Willig - Journal of Evaluation in Clinical Practice, 2021 - Wiley Online Library
Rationale, aims and objectives According to an influential taxonomy of varieties of
uncertainty in health care, existential uncertainty is a key aspect of uncertainty for patients …

Longitudinal assessment of health-related quality of life in osteoporosis: data from the population-based Canadian Multicentre Osteoporosis Study

WM Hopman, C Berger, L Joseph, SN Morin… - Osteoporosis …, 2019 - Springer
Little is known about the association between health-related quality of life (HRQOL) and
osteoporosis in the absence of fracture, and how HRQOL may change over time. This study …