Patient and public involvement in the design of clinical trials: an overview of systematic reviews

A Price, L Albarqouni, JO Kirkpatrick… - Journal of evaluation …, 2018 - Wiley Online Library
Background Funders encourage lay‐volunteer inclusion in research. There are controversy
and resistance, given concerns of role confusion, exploratory methods, and limited evidence …

Evaluation of research co-design in health: A systematic overview of reviews and development of a framework

S Peters, L Guccione, J Francis, S Best… - Implementation …, 2024 - Springer
Background Co-design with consumers and healthcare professionals is widely used in
applied health research. While this approach appears to be ethically the right thing to do, a …

How to incorporate patient and public perspectives into the design and conduct of research

P Hoddinott, A Pollock, A O'Cathain, I Boyer… - …, 2018 - pmc.ncbi.nlm.nih.gov
International government guidance recommends patient and public involvement (PPI) to
improve the relevance and quality of research. PPI is defined as research being carried out …

Participatory research in health promotion: a critical review and illustration of rationales

J Harting, K Kruithof, L Ruijter… - Health Promotion …, 2022 - academic.oup.com
In health promotion research, enthusiasm for patient and public involvement (PPI) is
growing. However, a lack of conceptual clarity leads to ambiguities in participatory …

Public involvement in global genomics research: a sco** review

JS Nunn, J Tiller, P Fransquet, P Lacaze - Frontiers in public health, 2019 - frontiersin.org
Public involvement in research occurs when the public, patients, or research participants are
actively contributing to the research process. Public involvement has been acknowledged as …

Involving patients and the public in medical and health care research studies: An exploratory survey on participant recruiting and representativeness from the …

J Lander, H Langhof, ML Dierks - PloS one, 2019 - journals.plos.org
Research on patient and public involvement so far concentrates on defining involvement,
describing its methods, and analyzing involvement practices in various individual research …

The Public's awareness of and attitude toward research biobanks–a regional German survey

S Bossert, H Kahrass, D Strech - Frontiers in genetics, 2018 - frontiersin.org
Background: Biobanks have become an increasingly important means of biomedical
research and innovation. However, they entail a variety of ethical, social and legal …

Pediatric Emergency Research Canada (PERC): patient/family‐informed research priorities for pediatric emergency medicine

L Bialy, AC Plint, SB Freedman… - Academic …, 2018 - Wiley Online Library
Background A growing body of literature supports patient and public involvement in the
design, prioritization, and dissemination of research and evidence‐based medicine. The …

Involving patient groups in drug research: a systematic review of reasons

C Rach, J Lukas, R Müller, M Sendler… - Patient preference …, 2020 - Taylor & Francis
Background Patients have evolved from mere objects of study to active contributors to drug
research in recent decades. Since individual patient's influence to change research …

The impact of university STEM assets: A systematic review of the empirical evidence

C Billing, G Bramley, C Ioramashvili, R Lynam… - Plos one, 2023 - journals.plos.org
Background Innovation ecosystems are an important driver of regional economic growth and
development. STEM assets connected to universities may play an important role in such …