Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology‐specific instruments
F Sampogna, AY Finlay, SS Salek… - Journal of the …, 2017 - Wiley Online Library
The patient is the centre of a web of relationships, and the impact of his/her disease on
family members and caregivers must be taken into account. The aim of this study was to …
family members and caregivers must be taken into account. The aim of this study was to …
[HTML][HTML] Assessing the quality of life in the families of patients with epidermolysis bullosa: the mothers as main caregivers
F Chogani, MM Parvizi, DF Murrell… - International Journal of …, 2021 - Elsevier
Background Epidermolysis bullosa (EB) is an uncommon group of inherited disorders
characterized by skin blistering after friction or mechanical trauma. EB affects patients and …
characterized by skin blistering after friction or mechanical trauma. EB affects patients and …
[HTML][HTML] Family impact of pemphigus disease in an Iranian population using the Family Dermatology Life Quality Index
Background Pemphigus vulgaris (PV) is a rare but seriously disabling disorder of the skin
and mucous membranes that can gravely impact the quality of life (QoL) of patients …
and mucous membranes that can gravely impact the quality of life (QoL) of patients …
Family dermatology life quality index in patients with pemphigus vulgaris: A cross-sectional study
Background and Aims: Pemphigus vulgaris is a rare autoimmune intraepidermal
vesiculobullous disease involving the skin and mucosa. It impacts the quality of life of both …
vesiculobullous disease involving the skin and mucosa. It impacts the quality of life of both …
Validation of the family health behavior scale for the brazilian population
LT Preto, CH Scarpatto, LLG Ley, C Silveira… - Jornal de …, 2022 - SciELO Brasil
Abstract Objective: To validate the Family Health Behavior Scale (FHBS) for Brazilian
families. Methods: The sample included 272 children aged 5 to 12 years old. Caregivers and …
families. Methods: The sample included 272 children aged 5 to 12 years old. Caregivers and …
Evaluation of quality of life in parents of the patients with vitiligo by Persian version of the family dermatology life quality index (FDLQI) in Kerman
Background Vitiligo can have negative effects on different aspects of life of the patients and
their families including financial and occupational issues, social relationship and selection of …
their families including financial and occupational issues, social relationship and selection of …
[PDF][PDF] Impact of drug abuse on family quality of life
As a chronic relapsing disorder, addiction not only erodes individuals' quality of life (QoL), it
may also affect their family's QoL. Family QoL represents the family's sense of being together …
may also affect their family's QoL. Family QoL represents the family's sense of being together …
Japanese version of the family dermatology life quality index: translation and validation
Y Higaki, M Tanaka, Y Futei, T Kamo… - The Journal of …, 2017 - Wiley Online Library
Skin conditions affect the quality of life (QoL) of patients and their family. To assess family
members' QoL, a questionnaire uniquely designed for family members is necessary. We …
members' QoL, a questionnaire uniquely designed for family members is necessary. We …
Translation, cultural adaptation, and validation of the Family Dermatology Life Quality Index instrument into the Brazilian Portuguese language (FDLQI-BRA)
Dermatological diseases are very prevalent; however, despite generally showing low
mortality, they can have high morb idity and impact on Quality of Life (QoL). Moreover, living …
mortality, they can have high morb idity and impact on Quality of Life (QoL). Moreover, living …
The family dermatology life quality index—formulation and validation of the polish version
J Marciniak, A Reich… - Forum Dermatologicum, 2016 - journals.viamedica.pl
Introduction: Atopic dermatitis appears to be one of the most popular skin diseases of
children and strongly influences the quality of patients' and their parents life. The aim of the …
children and strongly influences the quality of patients' and their parents life. The aim of the …