Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology‐specific instruments

F Sampogna, AY Finlay, SS Salek… - Journal of the …, 2017 - Wiley Online Library
The patient is the centre of a web of relationships, and the impact of his/her disease on
family members and caregivers must be taken into account. The aim of this study was to …

[HTML][HTML] Assessing the quality of life in the families of patients with epidermolysis bullosa: the mothers as main caregivers

F Chogani, MM Parvizi, DF Murrell… - International Journal of …, 2021 - Elsevier
Background Epidermolysis bullosa (EB) is an uncommon group of inherited disorders
characterized by skin blistering after friction or mechanical trauma. EB affects patients and …

[HTML][HTML] Family impact of pemphigus disease in an Iranian population using the Family Dermatology Life Quality Index

SZ Ghodsi, A Asadi, N Ghandi, K Balighi… - International Journal of …, 2020 - Elsevier
Background Pemphigus vulgaris (PV) is a rare but seriously disabling disorder of the skin
and mucous membranes that can gravely impact the quality of life (QoL) of patients …

Family dermatology life quality index in patients with pemphigus vulgaris: A cross-sectional study

S Sajedianfard, F Handjani, N Saki, A Heiran - Indian Journal of …, 2021 - ijdvl.com
Background and Aims: Pemphigus vulgaris is a rare autoimmune intraepidermal
vesiculobullous disease involving the skin and mucosa. It impacts the quality of life of both …

Validation of the family health behavior scale for the brazilian population

LT Preto, CH Scarpatto, LLG Ley, C Silveira… - Jornal de …, 2022 - SciELO Brasil
Abstract Objective: To validate the Family Health Behavior Scale (FHBS) for Brazilian
families. Methods: The sample included 272 children aged 5 to 12 years old. Caregivers and …

Evaluation of quality of life in parents of the patients with vitiligo by Persian version of the family dermatology life quality index (FDLQI) in Kerman

F Saeedeh, S Hossein, M Saman, K Maryam… - Journal of Pakistan …, 2019 - jpad.com.pk
Background Vitiligo can have negative effects on different aspects of life of the patients and
their families including financial and occupational issues, social relationship and selection of …

[PDF][PDF] Impact of drug abuse on family quality of life

N Navabi, A Asadi, N Nakhaee - Addiction & Health, 2017 - ahj.kmu.ac.ir
As a chronic relapsing disorder, addiction not only erodes individuals' quality of life (QoL), it
may also affect their family's QoL. Family QoL represents the family's sense of being together …

Japanese version of the family dermatology life quality index: translation and validation

Y Higaki, M Tanaka, Y Futei, T Kamo… - The Journal of …, 2017 - Wiley Online Library
Skin conditions affect the quality of life (QoL) of patients and their family. To assess family
members' QoL, a questionnaire uniquely designed for family members is necessary. We …

Translation, cultural adaptation, and validation of the Family Dermatology Life Quality Index instrument into the Brazilian Portuguese language (FDLQI-BRA)

MLM Souza, HA Miot, JE Martinez - Anais Brasileiros de …, 2024 - SciELO Brasil
Dermatological diseases are very prevalent; however, despite generally showing low
mortality, they can have high morb idity and impact on Quality of Life (QoL). Moreover, living …

The family dermatology life quality index—formulation and validation of the polish version

J Marciniak, A Reich… - Forum Dermatologicum, 2016 - journals.viamedica.pl
Introduction: Atopic dermatitis appears to be one of the most popular skin diseases of
children and strongly influences the quality of patients' and their parents life. The aim of the …