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Using genomics to track global antimicrobial resistance
The recent advancements in rapid and affordable DNA sequencing technologies have
revolutionized diagnostic microbiology and microbial surveillance. The availability of …
revolutionized diagnostic microbiology and microbial surveillance. The availability of …
Patients' and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
Introduction International sharing of health data opens the door to the study of the so-called
'Big Data', which holds great promise for improving patient-centred care. Failure of recent …
'Big Data', which holds great promise for improving patient-centred care. Failure of recent …
Clinical trial participants' views of the risks and benefits of data sharing
Background Sharing of participant-level clinical trial data has potential benefits, but
concerns about potential harms to research participants have led some pharmaceutical …
concerns about potential harms to research participants have led some pharmaceutical …
Public attitudes toward consent and data sharing in biobank research: a large multi-site experimental survey in the US
Individuals participating in biobanks and other large research projects are increasingly
asked to provide broad consent for open-ended research use and widespread sharing of …
asked to provide broad consent for open-ended research use and widespread sharing of …
[HTML][HTML] Mainstreaming genetics and genomics: a systematic review of the barriers and facilitators for nurses and physicians in secondary and tertiary care
Purpose Genetic and genomic health information increasingly informs routine clinical care
and treatment. This systematic review aimed to identify the barriers and facilitators to …
and treatment. This systematic review aimed to identify the barriers and facilitators to …
[HTML][HTML] Public attitudes toward biobanking of human biological material for research purposes: a literature review
Background: During the past few decades there has been a growing interest on the part of
many governments in the creation of biobanks. Nevertheless, this would be impossible …
many governments in the creation of biobanks. Nevertheless, this would be impossible …
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia
Trust may be important in sha** public attitudes to genetics and intentions to participate in
genomics research and big data initiatives. As such, we examined trust in data sharing …
genomics research and big data initiatives. As such, we examined trust in data sharing …
[HTML][HTML] Public preferences for digital health data sharing: discrete choice experiment study in 12 European countries
Background With new technologies, health data can be collected in a variety of different
clinical, research, and public health contexts, and then can be used for a range of new …
clinical, research, and public health contexts, and then can be used for a range of new …
Public willingness to participate in personalized health research and biobanking: A large-scale Swiss survey
This paper reports survey findings on the Swiss public's willingness, attitudes, and concerns
regarding personalized health research participation by providing health information and …
regarding personalized health research participation by providing health information and …
Systematic review of participants' attitudes towards data sharing: a thematic synthesis
Objectives Data sharing is well established in biological research, but evidence on sharing
of clinical trial or public health research study data remains limited, in particular studies of …
of clinical trial or public health research study data remains limited, in particular studies of …