OBJECTIVE. The objective of this study was to describe the experiences of parents who
have children with chronic kidney disease. METHODS. We conducted a systematic review …

Background. Advances in medical technology and nursing care have enabled children who
rely on long‐term medical and technical support to reunite with their families and community …

Children with medical complexity (CMC) are a subset of children and youth with special
health care needs with high resource use and health care costs. Novel care delivery models …

In the last three decades, mothers of children who have chronic illnesses or disabilities have
been studied extensively. With some notable exceptions, most research has overlooked the …

In the present study, families' experiences of caring for a technology‐dependent child were
examined from a temporal perspective. This involved exploring the multiple …

This article presents a review of the literature published from 1989 to 2005 for articles that
examined the economic burden incurred by families as a result of caring for a child with …

Objective To develop and validate a Distress Thermometer for Parents (DT-P) for chronically
ill children and to determine a cutoff score for clinical distress. Study design Parents of a …

Background A group of children with complex health care needs have emerged as a result
of medical advances and government policies emphasizing the community as the arena for …

Background Parents of chronically ill children are at risk for a lower Health Related Quality of
Life (HRQoL). Insight in the dynamics of factors influencing parental HRQoL is necessary for …

In the United Kingdom a new group of children with intensive and complex health care
needs are now being cared for at home as a result of medical advances and government …