Stigmatization and mental health impact of chronic pediatric skin disorders

AS Paller, SM Rangel, SL Chamlin, A Hajek… - JAMA …, 2024 - jamanetwork.com
Importance Chronic skin disorders in children frequently are visible and can cause
stigmatization. However, the extent of stigmatization from chronic skin disease and …

The role of self-esteem as moderator of the relationship between experienced stigma and anxiety and depression among tuberculosis patients

X Chen, Y Chen, L Zhou, J Tong - Scientific reports, 2023 - nature.com
Anxiety and depression are very common in tuberculosis (TB) patients and can adversely
affect TB treatment adherence, ultimately leading to higher morbidity, mortality and drug …

[HTML][HTML] Social stigma in children with long COVID

D Buonsenso, A Camporesi, R Morello, C De Rose… - Children, 2023 - mdpi.com
There is growing evidence that adults with Long COVID suffer from different sets of stigmata
related to their condition. In children with Long COVID, this aspect has never been …

Phenoty** pain in patients with fibrous dysplasia/McCune-Albright syndrome

E Golden, H van der Heijden, B Ren… - The Journal of …, 2024 - academic.oup.com
Context Pain is a poorly managed aspect in fibrous dysplasia/McCune-Albright syndrome
(FD/MAS) because of uncertainties regarding the clinical, behavioral, and neurobiological …

Craniofacial fibrous dysplasia: A review of current literature

T Sara, EM Riikka, TN Mikko - Bone, 2024 - Elsevier
Introduction Fibrous dysplasia (FD) is a rare genetic disease, in which normal bone is
replaced by fibro-osseus tissue. Disease severity varies greatly from single monostotic …

Lived experiences of neurofibromatosis type 1 patients: Social life, stigma, and intervention strategies

A Aghaei, K Herran, SA Fanaei… - Journal of Health …, 2024 - journals.sagepub.com
Neurofibromatosis type 1 (NF1) is a neurogenetic disorder associated with visual-spatial
problems, executive dysfunction, and language deficits, making patients experience social …

Social activity as mediator between social support and psychological quality of life among people with rare diseases: A national repetitive cross-sectional study

S Chen, Y Wang, L Zhu, Z Feng, S Gong… - Journal of Psychiatric …, 2022 - Elsevier
Background Considerable proportion of people with rare diseases (RDs) have suffered from
severe mental health problems. However, specific attention on the psychological quality of …

Self-stigma among children living with atopic dermatitis in Hong Kong: a qualitative study

QW **e, Z Liang - International Journal of Behavioral Medicine, 2022 - Springer
Background Stigma has been recently identified as a crucial factor associated with the
psychosocial burden of those who have chronic skin diseases. The self-stigma experiences …

When history, law, and medicine intersect

LL Levitsky - Current Opinion in Endocrinology, Diabetes and …, 2024 - journals.lww.com
This volume of the growth and development section of Current Opinion in Endocrinology,
Diabetes, and Metabolism provides four pertinent reviews. All present varying degrees of …

Understanding the Psychosocial Challenges of K-12 Students With Rare Diseases

T Thomas - 2024 - search.proquest.com
Children in K-12 with rare diseases confront unique psychosocial challenges in schools
across the United States. Challenges may include feeling isolated and misunderstood …