Background The main goal of pediatric palliative care (PPC) is to improve or maintain the
best possible quality of life (QoL) for the child and their family. PPC can be provided in …

Objectives Congenital heart defects (CHD) can be detected at ultrasound but are sometimes
not diagnosed until birth, which can cause stress and heightened emotion within the family …

Importance Despite concerns regarding the potential deleterious physical and mental health
outcomes among family members of a child with a life-threatening condition (LTC), few …

Background This study examined care needs and utilisation of psychosocial support
services among parents of children who had received specialist paediatric palliative care, as …

Background People who give care to autistic individuals (autism-caregivers) experience
higher levels of caregiver strain than people who provide care for individuals with other …

My son Jake has critical congenital heart disease. In 23 years of complex care at a top-notch
hospital, I do not ever remember a doctor asking Jake or myself how we were co** …

Introduction Despite palliative care being offered to paediatric cancer patients, it has limited
utilisation and often excludes parental support. Therefore, this review aims to consolidate …

Purpose The current study aims to understand inter-generational differences and similarities
in the perception of illness and the available resources employed by children with cancer …

Background Hope is negatively associated with parental psychosocial distress and
psychological maladjustment as well as an important aspect of emotional well-being and …

Children with medical complexity (CMC) have complex chronic conditions with significant
functional impairment, contributing to high caregiving demand. This study seeks to explore …