Caring for Africa's sickle cell children: will we rise to the challenge?

AP Oron, DL Chao, EE Ezeanolue, LN Ezenwa, FB Piel… - BMC medicine, 2020 - Springer
Background Most of the world's sickle cell disease (SCD) burden is in Africa, where it is a
major contributor to child morbidity and mortality. Despite the low cost of many preventive …

Empowering newborn screening programs in African countries through establishment of an international collaborative effort

BL Therrell, MA Lloyd-Puryear… - Journal of Community …, 2020 - Springer
In an effort to explore new knowledge and to develop meaningful collaborations for
improving child health, the First Pan African Workshop on Newborn Screening was …

Strategies to improve healthcare services for patients with sickle cell disease in Nigeria: The perspectives of stakeholders

H Isa, E Okocha, SA Adegoke… - Frontiers in …, 2023 - frontiersin.org
Background: Sickle cell disease (SCD) continues to pose physical and psychosocial
burdens to patients, caregivers and health workers. Stakeholder engagement in the …

Community based screening for sickle haemoglobin among pregnant women in Benue State, Nigeria: I-Care-to-Know, a Healthy Beginning Initiative

OU Ezenwosu, IU Itanyi, OE Nnodu, AG Ogidi… - BMC Pregnancy and …, 2021 - Springer
Background Haemoglobin genotype screening at prenatal care offers women an opportunity
to be aware of their genotype, receive education on sickle cell disease (SCD) and may …

Sickle cell disease in southwestern Nigeria: assessment of knowledge of primary health care workers and available facilities

SA Adegoke, MA Akinlosotu, OB Adediji… - Transactions of The …, 2018 - academic.oup.com
Background Patients with sickle cell disease (SCD) benefit optimally from comprehensive
care. In Nigeria, despite the huge burden, involvement of community health workers (CHWs) …

Preliminary evaluation of a point-of-care testing device (SickleSCAN™) in screening for sickle cell disease

MM Nwegbu, HA Isa, BB Nwankwo, CC Okeke… - …, 2017 - Taylor & Francis
Sickle cell disease affects about 150,000 births annually in Nigeria. Early diagnosis is
hampered by factors such as centralized and urban localization of laboratories, high cost of …

Health education to promote knowledge about sickle cell disease and newborn screening in pregnant women: a community-based pilot study using the healthy …

OU Ezenwosu, JO Olawepo… - BMC Pregnancy and …, 2024 - Springer
Background Pregnancy presents a critical period for any maternal and child health
intervention that may impact the health of the newborn. With low antenatal care attendance …

Prevalence of sickle cell disease among pregnant women in a tertiary health center in south-south Nigeria

OC Nwabuko, DA Okoh, C Iyalla… - Sub-Saharan African …, 2016 - journals.lww.com
Background: Sickle cell disease (SCD) is relatively prevalent in Nigeria and it is associated
with obstetric complications, especially in unsupervised pregnancies. This study was to …

Awareness, attitude, and acceptance of newborn screening for sickle cell disease among health workers and caregivers at primary healthcare centers in Gwagwalada …

I Hezekiah A, CI Oparaugo, GD Ajetomobi… - Frontiers in Public …, 2025 - frontiersin.org
Introduction Newborn Screening (NBS) is a public health program designed to identify and
provide early interventions for infants with genetic disorders such as Sickle Cell Disease …

[HTML][HTML] A multi-centre survey of acceptability of newborn screening for sickle cell disease in Nigeria

OE Nnodu, SA Adegoke, OU Ezenwosu, II Emodi… - Cureus, 2018 - ncbi.nlm.nih.gov
Background Sickle cell disease (SCD) is a major genetic disease that manifests early in life
and may lead to significant morbidities. One of the health care services that have been …