A meta‐ethnography of how children and young people with chronic non‐cancer pain and their families experience and understand their condition, pain services, and …

E France, I Uny, R Turley, K Thomson… - Cochrane Database …, 2023 - cochranelibrary.com
Background Chronic non‐cancer pain in childhood is widespread, affecting 20% to 35% of
children and young people worldwide. For a sizeable number of children, chronic non …

How young adults with sickle cell disease define “being a good patient” in the adult healthcare system

C Nwora, EJ Prince, L Pugh, MS Weaver… - Pediatric blood & …, 2024 - Wiley Online Library
Background Young adulthood brings new challenges for managing sickle cell disease.
There are fewer adult specialists, sickle cell disease morbidities accumulate, and mortality …

Understanding how children and young people with chronic non-cancer pain and their families experience living with pain, pain management and services: a meta …

MS Bianchim, L Caes, L Forbat… - Health and Social …, 2024 - researchonline.gcu.ac.uk
Background: Childhood chronic pain is a widespread public health issue. We need to
understand how children with chronic pain and their families experience chronic pain and its …

[PDF][PDF] Living well with multiple long-term conditions: young people's care experiences explored within the frameworks of the early adaptation process and ecological …

T WHITTLE - 2024 - cris.brighton.ac.uk
Living well with multiple long-term conditions: young people’s care experiences explored within
the frameworks of the early ad Page 1 TRACY WHITTLE A thesis submitted in partial fulfilment …

Late diagnosis of sickle cell disease in adults still a challenge in develo** countries: a case report

VE Mswelo, K Mubaraka, Y Mohamed… - Journal of Medical Case …, 2024 - Springer
Background Sickle cell disease is a genetic disease with multisystem involvement. More
than 300,000 children are born with sickle cell disease globally, with the majority of cases …

Transition preparation and satisfaction of care among adolescents and young adults with sickle cell disease at the Ghana Institute of Clinical Genetics

M Kwarteng-Siaw, ABA Kuma… - Journal of Pediatric …, 2022 - journals.lww.com
Expanding services in Ghana for people with sickle cell disease is expected to increase
childhood survival and need for transition to adult care. Little is known about patient …

Needs assessment in adults and parents of children living with sickle cell disease in Jamaica.

J Knight‐Madden, L King, M Asnani… - British Journal of …, 2023 - search.ebscohost.com
A survey-based needs assessment of barriers to optimal sickle cell disease care in the
emergency department. 2007; 10 (1): 10-8. 7 Ross D, Sinha C, Bakshi N, Krishnamurti L …

[BOK][B] Factors Influencing Transitional Care Seeking Behaviors of African Americans Living with Sickle Cell

ECE Washington - 2023 - search.proquest.com
Sickle cell (SC) is an inherited blood disorder that affects millions globally and
approximately 100,000 people in the United States. SC causes excruciating pain and organ …

[PDF][PDF] PRESENTEE POUR LE DIPLOME DE DOCTEUR EN MEDECINE

D d'Etat - 1990 - publication-theses.unistra.fr
«Ah! Les gens qui font des régimes «sans»!» est la réaction à laquelle on pourrait s'
attendre si on évoquait auprès des médecins le sujet des régimes d'exclusion du gluten ou …