Public attitudes toward biobanking of human biological material for research purposes: a literature review
Background: During the past few decades there has been a growing interest on the part of
many governments in the creation of biobanks. Nevertheless, this would be impossible …
many governments in the creation of biobanks. Nevertheless, this would be impossible …
[PDF][PDF] Ethical aspects of human biobanks: a systematic review
Method We searched the Web of Science and PubMed databases to find studies addressing
ethical problems in biobanks with no limits set (study design, study population, time period …
ethical problems in biobanks with no limits set (study design, study population, time period …
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia
Trust may be important in sha** public attitudes to genetics and intentions to participate in
genomics research and big data initiatives. As such, we examined trust in data sharing …
genomics research and big data initiatives. As such, we examined trust in data sharing …
Research participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysis
Background Appropriate information and consent has been one of the most intensely
discussed topics within the context of biobank research. In parallel to the normative debate …
discussed topics within the context of biobank research. In parallel to the normative debate …
When biobanks meet religion: Association between religiosity and attitudes of Polish medical students toward biobanking of human biological material for research …
While biobanking is expanding globally, the empirical evidence concerning the impact of
religion on future healthcare professionals' awareness and willingness to donate …
religion on future healthcare professionals' awareness and willingness to donate …
Perceptions, attitudes, and willingness of the public in low-and middle-income countries of the Arab region to participate in biobank research
Population-based genomics studies have proven successful in identifying genetic variants
associated with diseases. High-quality biospecimens linked with informative health data …
associated with diseases. High-quality biospecimens linked with informative health data …
Public trust and trustworthiness in biobanking: the need for more reflexivity
Low levels of public trust in biobanks are perceived to be a deterrent to participation and a
threat to their sustainability. Acting in a “trustworthy” manner is seen to be one approach to …
threat to their sustainability. Acting in a “trustworthy” manner is seen to be one approach to …
Broad consent for research on biospecimens: The views of actual donors at four US medical centers
TD Warner, CJ Weil, C Andry… - Journal of Empirical …, 2018 - journals.sagepub.com
Commentators are concerned that broad consent may not provide biospecimen donors with
sufficient information regarding possible future research uses of their tissue. We surveyed …
sufficient information regarding possible future research uses of their tissue. We surveyed …
Public views on the donation and use of human biological samples in biomedical research: a mixed methods study
Objective A mixed methods study exploring the UK general public's willingness to donate
human biosamples (HBSs) for biomedical research. Setting Cross-sectional focus groups …
human biosamples (HBSs) for biomedical research. Setting Cross-sectional focus groups …
[HTML][HTML] Dynamic consent and personalised medicine
L Goncharov, H Suominen, M Cook - The Medical Journal of …, 2022 - ncbi.nlm.nih.gov
In Australia, guidelines for ethical conduct of human research are defined in the National
Statement on Ethical Conduct in Human Research, which states:“consent should be a …
Statement on Ethical Conduct in Human Research, which states:“consent should be a …