Objective To develop recommendations to enable successful inclusion of the patient
perspective in European League Against Rheumatism (EULAR)-funded scientific research …

Increasing numbers of drugs are being developed for the treatment of multiple sclerosis
(MS). Measurement of relevant outcomes is key for assessing the efficacy of new drugs in …

Background Valid, reliable and responsive Patient-Reported Outcome (PRO) questionnaires
for young to middle-aged, physically active individuals with hip and groin pain are lacking …

The growing emphasis on patient-centered care has accelerated the demand for high-
quality data from patient-reported outcome (PRO) measures. Traditionally, the development …

This is the third in a three part series of reports presenting current evidence on
patientreported outcome measures (PROMs). It presents findings from systematic analysis of …

Background—Despite the growing epidemic of heart failure with preserved ejection fraction
(HFpEF), no valid measure of patients' health status (symptoms, function, and quality of life) …

Objective To assess the inclusion of patients as international research partners in Outcome
Measures in Rheumatology (OMERACT) conferences and how this has influenced the …

Background Achalasia is a disease of mechanical esophageal dysfunction characterized by
dysphagia, chest pain, regurgitation, and malnutrition. The Eckardt symptom score (ESS) is …

Quality-of-life and psychosocial oncology studies that have low participation might have less
precision, less statistical power, and can have non-response bias. In this systematic Review …

Background: The proportion of patients perceiving their symptoms as either acceptable or as
a failure of treatment after anterior cruciate ligament reconstruction (ACLR) is unknown …